Home         Forums  

Go Back   Marrowforums > Treatments > Transfusions and Iron Overload
Register FAQ Search Today's Posts Mark Forums Read

Transfusions and Iron Overload Blood and platelet transfusions, iron testing and treatments

Reply
 
Thread Tools Search this Thread
  #1  
Old Tue Aug 21, 2012, 02:35 AM
shanghied6 shanghied6 is offline
Member
 
Join Date: May 2012
Location: Auckland, New Zealand
Posts: 4
Question Chelation for iron overload.

Hi all,
Have been on this chelation pump for about 6 weeks Iron has gone from 4800to 3200. Had blood transfusion last friday and feel worn out and no energy, surely the RBC wouldnt drop so soon. I am so sick of this illness, I never have a good day anymore. Bless all of you.
Reply With Quote
  #2  
Old Tue Aug 21, 2012, 04:07 AM
gramous gramous is offline
Member
 
Join Date: Apr 2012
Location: belgium
Posts: 73
hello,

what kind of mds do you have? you have a high ferritin's level and i'm not sure that is from transfusions only... If I'm well remember you're been on tranfusion since june?
For energy, you can try coenzyme Q10 on the form ubiquinol (not ubiquinone)...
How high are your counts?

take care béné
__________________
boyfriend with RARS-T dx 11/02//dx : hb 11,5; plt 870000, wh : 6500//Before fasting cure (13/04): hb: 8,9; plt 2200000; white:6000//After fasting cure (14/09): hb 12,5; platelets 400000, wh 3000.//Now (15/08) : hb : 11,plt : 650000, wh 3000// hydrea 1c/day and cardioaspirin, 1c/day,age: 56 y.
Reply With Quote
  #3  
Old Tue Aug 21, 2012, 04:09 AM
Birgitta-A Birgitta-A is offline
Member
 
Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
Iron chelation

Hi Delwyn,
Too bad that you feel tired though the HGB is quite high! You have responded very well to Desferal. Often the transfusion intevals will be longer when you start iron chelation - the bone marrow doesn't like too much iron just like the liver, heart and so on.
Kind regards
Birgitta-A
Reply With Quote
  #4  
Old Tue Aug 21, 2012, 06:52 AM
shanghied6 shanghied6 is offline
Member
 
Join Date: May 2012
Location: Auckland, New Zealand
Posts: 4
Quote:
Originally Posted by gramous View Post
hello,

what kind of mds do you have? you have a high ferritin's level and i'm not sure that is from transfusions only... If I'm well remember you're been on tranfusion since june?
For energy, you can try coenzyme Q10 on the form ubiquinol (not ubiquinone)...
How high are your counts?

take care béné
Thanks for your reply, I have Myelodysplastic Syndrome. I have Transfusions every 12 to 14 days. My red cell count goes down to 7.4, 8.1, then I have the transfusion. Im not sure what this is (coenzyme Q10 on the form ubiquinol) I am in New Zealand and havent heard of this before.
Regards Delwyn
Reply With Quote
  #5  
Old Tue Aug 21, 2012, 09:14 AM
gramous gramous is offline
Member
 
Join Date: Apr 2012
Location: belgium
Posts: 73
hello,

Q10 is an complentary food... it has antioxydant action and for my boyfriend that help to fight the tiredness.. patient with cancer in general have a low Q10 rate... and the oncologist said us to try this medication... that give some results.

Q10 ubiquinol is more active that uniquinon form.

hope that can help you.... what is the stade of our disease? Do you have ring sideroblast?
take care béné
__________________
boyfriend with RARS-T dx 11/02//dx : hb 11,5; plt 870000, wh : 6500//Before fasting cure (13/04): hb: 8,9; plt 2200000; white:6000//After fasting cure (14/09): hb 12,5; platelets 400000, wh 3000.//Now (15/08) : hb : 11,plt : 650000, wh 3000// hydrea 1c/day and cardioaspirin, 1c/day,age: 56 y.
Reply With Quote
  #6  
Old Tue Aug 21, 2012, 01:35 PM
Birgitta-A Birgitta-A is offline
Member
 
Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
Low HGB

Hi Delwyn,
No wonder if you feel tired with such a low HGB as 7.4 or 8.1. Many patients need 10.0 and should be transfused so high that they have a good quality of life. In up to date clinics they have no rules for transfusions but ask the patients how they feel.

When I was transfusion dependent I discussed transfusions with the nurses - I felt OK when the HGB was above 8.0 but we are all different.
Kind regards
Birgitta-A
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Advised to start chelation Mseth Transfusions and Iron Overload 53 Thu Apr 3, 2014 02:16 PM
MDS Iron Overload shanghied6 MDS 8 Thu Jul 12, 2012 08:52 PM
ASH 2010 Highly Transfused MDS Patients Often Have Cardiac Iron Overload akita Transfusions and Iron Overload 0 Wed Dec 15, 2010 05:21 PM
Report 2006 Iron Overload can mimic hepatic GVHD akita Transfusions and Iron Overload 0 Sun Dec 12, 2010 02:43 PM
ASH 2010 Iron Overload results in deficient Hematopoiesis akita Transfusions and Iron Overload 0 Sat Dec 11, 2010 04:43 PM


All times are GMT -4. The time now is 09:29 AM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org