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#1
Tue Oct 1, 2013, 02:30 PM
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What is importance of day 100 ?
I see transplant patients celebrating day 100, but I didn't know why it was important. Tomorrow is my day 100 for my stem cell transplant.
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62 yr old female. dx AA 3/12.treated with ATG 4/12.dx MDS 4/13. MUD BMT on June 25th,2013 
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#2
Tue Oct 1, 2013, 02:44 PM
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It's a somewhat arbitrary number, like day 100 of kindergarten :-). However, statistically speaking, doctors are able to predict typical recovery timelines based on observations of patients over time. For example, post transplant complications are statistically less frequent after the first 100 days. My doctors actually mark day 60 as the milestone. Also, graft versus host disease (GvHD) occurring in the first 100 days is generally acute, while anything after is usually chronic. The two varieties of GvHD involve different subsets of immune cells. Congratulations on day 100!
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Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
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#3
Tue Oct 1, 2013, 03:29 PM
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Congratulations!!!
The real question is how are you feeling??? (great I would hope...) 
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Married, father of three daughters; now 46; diagnosed w/ Major form MDS 6/18/2013; had low counts across the board; Multiple chromosome abnormalities; Finished 2nd round Dacogen 9/13; SCT - Oct. 31, 2013; Sibling match 10/10 ; 5.5% blasts down to 3%, now 1% (post BMT)
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#4
Wed Oct 2, 2013, 07:39 AM
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day 100
Quote:
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MDS RAEB 2 w/excess blasts - 3+ Fibrosis - previous treatments ATG, Vidaza, Dacogen and Rituxan. Waiting to find my match - Susan
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#5
Thu Oct 3, 2013, 01:13 PM
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Day 1970
Congratulations on Day 100! It is a milestone to celebrate. My husband is celebrating Day 1970 today from his stem cell transplant. This transplant was auto and to cure the NHL . . . it also served to set him up for the tMDS, but I guess we would have to say that without the transplant he probably wouldn't still be here 1970 days later, so it's all to the good. More or less.
We have been in the blood cancer fight for over 12 years now, and a big part of what keeps us going is positive attitude. We celebrate things. We celebrate Mondays (we got married on a Monday), we celebrate the sun rising . . . and setting . . . and we celebrate Day 1970. And Day 1971. And Day 1972. And being here to continue putting one foot in front of the other, one day after the other. Sometimes we have had to stretch to find something to celebrate . . . but we find it and we celebrate it. Today, we will celebrate your Day 100 . . . or I guess today it's Day 102 we're celebrating with you. Enjoy!
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hubby 73, dx NHL 2001, CNS involvement. SCT (auto) 5/08 [dx UTUC renal pelvis, 2010/surgeries/MMC], MANY recurrences, chemos, surgeries, rad. dx t-MDS 3/11: IPSS 1.5 (Int-2); MDA 11, RCMD trilineage, inc. Fe, ring sideroblasts, 7q del/mono 7 (51.5%), 46,XY,t(6,17)(p22;q25)[4]/45,XY,-7[4]/46,XY[12].
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#6
Fri Oct 4, 2013, 01:23 AM
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Darice, I'm day 1039, and we do the same sort of celebrating as you.
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Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
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#7
Fri Oct 4, 2013, 06:32 AM
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To all
Happy Days to All - wishing much happiness and success in your lives.
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MDS RAEB 2 w/excess blasts - 3+ Fibrosis - previous treatments ATG, Vidaza, Dacogen and Rituxan. Waiting to find my match - Susan
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#8
Mon Oct 21, 2013, 08:36 PM
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congratulations!
While I've not been on for awhile, I have thought of you and prayed that you were doing well too. You are one day older than me!
I guess I got a little shaky about getting on the forum because of the two gentlemen who posted on the forum passed soon after I got home. They had wonderful attitudes and said they didn't regret transplantation. A favorite phrase on harder days: This journey isn't for wimps. Luckily neither of us are.
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Wife and mother of three young boys, diagnosed at age 39 with AA 2007; treated with ATG and cyclosporine; progressed to MDS end of 2012; MUD on June 26, 2013.
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#9
Tue Oct 22, 2013, 01:08 PM
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4bcsboys
I was glad to hear from you. I have been wondering how you are doing and praying for you. I don't know if I will ever get my energy back. They talk about the new normal, I'm not sure what that means, but I think it means that we will never be like we were before.
You are right, this journey is not for wimps.
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62 yr old female. dx AA 3/12.treated with ATG 4/12.dx MDS 4/13. MUD BMT on June 25th,2013
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#10
Wed Oct 23, 2013, 05:48 PM
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Vicki,
You are still an infant in transplant time. With more tine, you should feel stronger and less tired. It happens gradually. You're doing great! Karen
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Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
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