Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > MDS
Register FAQ Search Today's Posts Mark Forums Read

MDS Myelodysplastic syndromes

Reply
 
Thread Tools Search this Thread
  #1  
Old Fri Apr 19, 2019, 05:04 PM
mdsmom mdsmom is offline
Member
 
Join Date: May 2018
Location: usa
Posts: 5
MDS progressed to AML

My Mom was diagnosed having MDS on December 4, 2017. Last month the doctor told us that it has progressed to AML and the peripheral blasts is 60% and she has couple of weeks or months to live. They did not do the bone marrow tests as it is painful. She will turn 77 in June. She had 10 cycles of Decitabine and was told in March,2019 that it had stopped working.

This week we started her on Vidaza but she got severe side effects on the 2nd injection (Severe back pain and legs became numb). We have decided to stop the injection for good.

Her hemoglobin is 10.5, Total count has gone up to 15000( previously it used to be lower than 2000) RBC 3.2, Neutrophils 57%, Lymphocytes 72%, Platelets fall below 10,000 every 4-5 days now and needs transfusion.

Is there anything else we can do? How long do you think the patient can survive with this condition. She is strong and has lot of will power and does not give up easily.

Thanks for your support and advice.
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
MDS - VA assigns diagnostic code 7725 Tommy Daniels MDS 4 Sun Jan 22, 2017 03:51 PM
FIL's MDS turned to AML ltw Tell Your Story 5 Fri Aug 24, 2012 12:55 PM
Genetic Mutations In MDS Persist After Progression To AML Sally C MDS 0 Tue Apr 10, 2012 02:34 PM
My father's MDS has progressed to AML susaq MDS 2 Thu Oct 2, 2008 03:57 PM


All times are GMT -4. The time now is 10:51 AM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org