Home         Forums  

Go Back   Marrowforums > Practical Issues > Questions and Answers
Register FAQ Search Today's Posts Mark Forums Read

Questions and Answers Not sure where to post a question? Post it here.

Reply
 
Thread Tools Search this Thread
  #1  
Old Wed Jul 20, 2016, 05:15 AM
Naive Naive is offline
Member
 
Join Date: Jul 2016
Location: Gold Coast, Queensland, Australia
Posts: 77
Iron deficiency

Hi, I have an iron deficiency. I've required a couple of blood transfusions in the last couple of months. Lowest Hb was 54.

I just received a copy of my blood test taken before my first transfusion. The doctor didn't discuss these results with me and I didn't look at them until I got home.

I have some concerns. The results say

Pancytopaenia.

Leucoerythroblastic blood picture with rare myelocyte and nucleated RBC seen.

Red cell morphology shows anistocytosis, hypo chromic and micro cystic cells and stomatocytes.

Eosinophils show dysplastic changes.

WCC 1.9 L
Hb 54 L
Plat 130 L
HCT 0.2 L
RCC 2.96 L
MCV 69.1 L
MCH 19.8 L
MCHC 286 L
RDW 18.7 H
Neuts 0.9 L
Lymph 0.6 L
Mono 0.25 N
Eos 0.5 N
Baso 0.01 N
Reticent 55 N
Retic% 1.9 N

The recommendation was to correlate symptoms with the blood results and consider a bone marrow biopsy.

I feel fine since I've had my last transfusion but the only counts that have improved are my Hb and RCC.

After Dr Google my main questions are....are stomatocytes indicative of anything nasty and the dysplastic eosinophils...I don't like the sound of that even though the count is normal.

Any suggestions for questions to ask the haematologist would be appreciated.

As an incidental finding I also have a chromosome deletion (small) that is related to Autism.
Reply With Quote
  #2  
Old Wed Jul 20, 2016, 08:48 AM
bailie bailie is offline
Member
 
Join Date: Dec 2013
Location: McMinnville,OR
Posts: 825
I think a bone marrow biopsy should be done soon, but I am not a doctor. I have had 17 of them and for me they haven't been a problem. I hope you are feeling better. It is good that you are doing your research.
__________________
age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.
Reply With Quote
  #3  
Old Wed Jul 20, 2016, 05:37 PM
Fana Fana is offline
Member
 
Join Date: Jul 2014
Posts: 29
Totally agree with bailie, get the bone marrow biopsy done Soon.good luck
__________________
Fana,mother of asad age 8 diagnosed SAA 2014, trying to decide between ATG or BMT..decided on BMT and finally did it
Reply With Quote
  #4  
Old Wed Jul 20, 2016, 09:24 PM
Cheryl C Cheryl C is offline
Member
 
Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 838
I agree you need to follow up on this and have a biopsy.
__________________
Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
Reply With Quote
  #5  
Old Wed Jul 20, 2016, 11:06 PM
Naive Naive is offline
Member
 
Join Date: Jul 2016
Location: Gold Coast, Queensland, Australia
Posts: 77
Thank you

Thanks for your answers. I'm more than willing to have a bone marrow biopsy to sort this out but my doctor hasn't suggested it even though the blood report mentions it.

How to ask about having one without seeming pushy or questioning his competence?
Reply With Quote
  #6  
Old Thu Jul 21, 2016, 01:09 AM
Neil Cuadra Neil Cuadra is offline
Owner
 
Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,499
Quote:
Originally Posted by Naive View Post
Thanks for your answers. I'm more than willing to have a bone marrow biopsy to sort this out but my doctor hasn't suggested it even though the blood report mentions it.

How to ask about having one without seeming pushy or questioning his competence?
Naive,

I suggesting being straightforward. For example, you can say "My test results recommend a bone marrow biopsy. From what I've read, that makes sense because of my unexplained low counts. Is that right?"

Keep in mind that doctors who take offense at patient questions aren't the best doctors. If, instead, your doctor appreciates a sensible question that shows you want to learn about your condition and you are participating in the decision-making process, that's a good sign.
Reply With Quote
  #7  
Old Fri Jul 22, 2016, 01:53 AM
Naive Naive is offline
Member
 
Join Date: Jul 2016
Location: Gold Coast, Queensland, Australia
Posts: 77
Thanks Neil, I went to see my GP and he looked at the report and said it was suspicious for cancer but I need to have more investigations. I'm seeing the haematologist again in two weeks.
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Here is what we have been through so far.. any thoughts? Maesmom Tell Your Story 20 Mon Sep 17, 2012 10:56 AM
ASH 2010 Iron Overload Accelerates Development of Leukaemia - Mouse Model akita Transfusions and Iron Overload 0 Sat Dec 11, 2010 04:21 PM
Iron Overload, Liver and Heart Function Francine S Transfusions and Iron Overload 7 Mon Jun 1, 2009 01:01 PM
Can too much iron make you feel run down? Dick S MDS 3 Fri Jun 6, 2008 10:41 AM


All times are GMT -4. The time now is 03:15 PM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2020, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright 2006-2020 Marrowforums.org