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#1
Sat Sep 19, 2015, 10:32 PM
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MPV
What does anyone know about a low MPV (in the 4's)?
With a normal platelet count? My son has had a low MPV for the past 2.5 years with fluctuating anemia, extremely high b12, hyper cellular bone marrow, and and M:E ratio of 4.9:1 which had increased from the bone marrow the time before. It seems like individually these things all mean something, but alone they may not. If I only understood this better. 
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#2
Sun Sep 20, 2015, 01:57 PM
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Where do you live?
__________________
Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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#4
Mon Sep 21, 2015, 11:12 AM
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Quote:
__________________
Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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#5
Tue Sep 22, 2015, 12:11 AM
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Thank you for the suggestion. I will look him up. Why do you recommend him so highly? Do you have any specific feedback on anything I wrote in the meantime? We we see a doctor currently, but they are at a really big loss for what is happening.
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#6
Tue Sep 22, 2015, 11:42 AM
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Quote:
http://health.usnews.com/doctors/david-margolis-355775 He is considered the best person for aplastic anemia for children. Very approachable. He probably can recommend someone in your area.
__________________
Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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#7
Tue Sep 22, 2015, 12:17 PM
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Dr. Margolis is not only one of the most knowledgable physicians when it comes to pediatric aplastic anemia, but he's also one of the friendliest.
He works with his own patients, but also regularly attends patient conferences around the country to offer explanations and advice to families. See the promo video he made for one conference.
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