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MDS Myelodysplastic syndromes

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  #1  
Old Mon Jul 16, 2007, 05:22 PM
lost lost is offline
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Join Date: Apr 2007
Location: canada
Posts: 20
cold...and bad cough

Hello everyone... well at the last appt. everything was good...Pierre,s plaquetts went up ..his counts are...wbc-3.4..rbc..118..and plaquetts..46
the doc..wants us to go back only in 4 weeks....since then our granddaughter came for a viset...she was sick ...then I had to take pierre to hosipatal...with a bad cough...they gave him antibiotique,s...that kind of scared me...he,s a bit better ...but he has these, ulcur,s in his throut...
he was down the oyher and did alot of crying...it,s so sad and hurts alot ..to see someone you love so much feel so helpless and scared ..we go back to the doc..on the 25 of july...I keep updateing ..thanks for this place .I ,m praying everyday for everyone...god bless...
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Old Tue Jul 17, 2007, 05:47 PM
Linda Linda is offline
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Join Date: Sep 2006
Location: Goldsboro, NC
Posts: 67
Arrow Keep sickness away.

Hi,
Since my husband's dx, if his white count and neuts are low, we ask people with sniffles and coughs to stay away. If someone has to come we have masks like they have at the hospital for them to put on. No one wants to help him wind up in the hospital, so they don't mind following our wishes.
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Linda, Wife of Bob, dx REAB-1 19 Jan. 06. Beginning numbers 19% blasts, Vidaza for 10 cycles then stopped responding, as of Apr 07 REAB-T Blasts at 20 (AML). 2 cycles of Dacogen May and June, 3rd in Sep. Counts bottomed out (WBC and Plts). BMB in Oct. showed blasts at 51%. NC
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  #3  
Old Tue Jul 17, 2007, 05:55 PM
Neil Cuadra Neil Cuadra is offline
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Join Date: Jul 2006
Location: Los Angeles, California
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Sometimes it's awkward to avoid people with colds, and nobody wants to send well-meaning friends or relatives away, or offend them. But when the patient's health is at risk, you have to speak up, even if it is embarrassing.

Asking visitors to take precautions, as Linda does, is perfectly reasonsable. Once you explain why you have to be so careful, I've found that people are pretty understanding about it.
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