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Old Mon Mar 31, 2014, 04:34 PM
Caregive Caregive is offline
Join Date: Nov 2013
Location: USA
Posts: 61
Defense Dept. bone marrow failure research

I was checking the net for research and came across this. Now to find if there is other money funding research other than with the Defense Dept.

Caregiver for husband
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Old Mon Mar 31, 2014, 06:10 PM
triumphe64 triumphe64 is offline
Join Date: Feb 2008
Location: Dallas, Texas
Posts: 441
Great summary.
Dallas, Texas - Age 77 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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Old Sat Apr 19, 2014, 09:53 PM
barbara a barbara a is offline
Join Date: Jul 2013
Location: hendersonville,nc
Posts: 51
Defense Bone Marrow Research Grants

thank you for the referral I am doing research on Aplastic Anemia and Myleodysplastic Syndromes and Agent Orange- I have not found a "scientific study or quality health report" which the VA demands maybe I will here- if you come across anything you think may assist my endeavors please send me a post- member Barbara A I follow the thread on the forum of MDS
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Old Wed Oct 29, 2014, 11:38 PM
MissDaisy MissDaisy is offline
Join Date: Sep 2013
Posts: 6
I didn't find who in the DoD was receiving funding, but military doctors do treat military patients and their dependents for all kinds of medical conditions.

My sister, who was a military dependent, was scheduled to receive one of the first bone marrow transfusions for AML. She didn't make it as she had a CVA and died.
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Old Tue Aug 18, 2015, 10:49 AM
SASSI07855 SASSI07855 is offline
Join Date: Feb 2015
Location: Perry, Georgia
Posts: 23
Google http://www.index.va.gov/search/va/search_tips.jsp
select from the list U.S. Department of Veterans Affairs Search Tips
select from the right side Search Portals Board of Veterans' Appeals Decision Search

I did a search, and I could not find much regarding any reference to the Board of Veterans Appeals Decision Search results. I stumbled across this resource not long ago. I have found this source to be very helpful. I have been able to use past court decisions and incorporate a lot of information, including case decisions and Code of Federal Regulation references among other things from these decisions into my claim process. It was especially valuable when I filed for VA compensation due to MDS and Agent Orange. If you have not tried this site please do the following; first Google
then from the list that pops up select
U.S. Department of Veterans Affairs Search Tips
then select from the right side a little ways down under
Search Portals select Board of Veterans' Appeals Decision Search.
You then can search for MyeloDysplastic Syndrome cases by year.
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