Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > MDS
Register FAQ Search Today's Posts Mark Forums Read

MDS Myelodysplastic syndromes

Thread Tools Search this Thread
Old Tue Feb 7, 2012, 08:06 PM
Marrowforums Marrowforums is offline
Join Date: Jul 2006
Posts: 867
MDS Patients Wanted for Survey

The Aplastic Anemia & MDS International Foundation (AA&MDSIF) has set up an online survey to help assess how MDS and its treatment affect people's lives. Their goal is to improve MDS treatment in the future.

The survey is anonymous and voluntary, but only suitable for MDS patients currently undergoing treatment. You should be able to complete the survey in 20 to 30 minutes and you are welcome to have a family member or caregiver assist you.

MDS patients are invited to click the link below to take the survey and help the AA&MDSIF with this research. For further details see the AA&MDSIF Staying on Treatment page.

Reply With Quote
Old Wed Feb 8, 2012, 10:37 AM
Marrowforums Marrowforums is offline
Join Date: Jul 2006
Posts: 867
As several forum users have noticed, the survey currently requires a U.S. zip code. The AA&MDSIF is looking into changing the survey to allow non-U.S. patients to participate.
Reply With Quote
Old Wed Feb 8, 2012, 11:00 AM
JackieKallenbach JackieKallenbach is offline
Join Date: Feb 2012
Location: Rockville, Maryland
Posts: 2

This is Jackie from AA&MDSIF. Thank you for trying to participate in this survey and letting us know of the postal code problem. We do value your responses so we encourage you to take the survey again and use "12345" (this is a New York zip code) as the zip code. We apologize for the inconvenience and thank you for your support.

If you have any questions about the survey, please contact Jean Logan by email at logan@aamds.org or by phone at (301) 279-7202, Ext. 114.
Reply With Quote

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Smoking and bone marrow failure lacanada1 Bone Marrow Failure 3 Tue Jan 31, 2012 02:12 PM
New Oral Medication Gives Hope to Patients with Blood Cancer Doug Mylie Canada 0 Sat Mar 8, 2008 01:27 PM

All times are GMT -4. The time now is 04:37 AM.

Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2019, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright 2006-2019 Marrowforums.org