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#1
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Houston Hope, Steps & A Cure, March 22, 2014
The first Houston walk will be March 22, 2014.
Details will follow soon.
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/ |
#2
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The web page is up for the March 22 Houston walk is up.
Hotel registration for a discount must be made by March 7. https://friendraising.towercare.com/...dCode=Q8X7XYXR
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/ |
#3
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Hope, Steps & A Cure Houston 2014 - Details
Hope, Steps & A Cure Houston is a fun and festive walk to raise community awareness about bone marrow failure diseases while raising much needed funds for the Aplastic Anemia & MDS International Foundation (AA&MDSIF) to provide programs and services to help patients and families. The inaugural walk will take place on Saturday, March 22, 2014 at Lynn Eusan Park on the campus of the University of Houston, in collaboration with the university's annual Frontier Fiesta. Marrowforums members are invited to participate in the events, sponsor a participant, or make a general donation. Fundraising has already begun! Hope, Steps & A Cure Houston will be a day of fun, connecting with fellow patients and families, hearing inspirational speakers, and three events you can register for: 1. The Hope, Steps & A Cure Walk Walk with your family and your support team, at your own pace.2. Frontier Fiesta 5K for the Brave A competitive 5K race.3. Brave Little Soles A Kid's Fun Run.Where: Lynn Eusan ParkWhen: Saturday, March 22, 2014Hotel for out-of-towners: Crowne Plaza-Houston River Oaks (Google map)For further details: Event page If you plan to attend Hope, Steps & A Cure Houston, post in this thread to let other attendees know to look for you! After the event, let us know what you thought of it. |
#4
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I will be there.
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/ |
#5
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All signed up to run!!! If Dr clears my husband wants to volunteer
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium. 10/10 MUD 10/10/13 Now no PNH or AA. Mixed Chimerisim |
#6
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You were the first runner to sign up. They said you would get Bib #1. I hope that is so. I'll pass the word along about your husband.
__________________
Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/ |
#7
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Awesome!!! I have 3 others signing up Ill share on my FB again so hopefully more will!
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium. 10/10 MUD 10/10/13 Now no PNH or AA. Mixed Chimerisim |
#8
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There is still time to sign up.
__________________
Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/ |
#9
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So this was my first 5k and first hope steps and a cure (I volunteered at the bethematch walk run) if you haven't been I strongly reccomend! It was such an amazing experience of comradery, true hope and the most determined group of people I have ever met. I saw a woman about to have a transplant running!
Anyway weather it's volunteering, running, walking, or even signing up the littles for tot trot its a fun way to give back to an organization that has given a lot to many of us
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium. 10/10 MUD 10/10/13 Now no PNH or AA. Mixed Chimerisim |
#10
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Final tallies:
Over 310 walkers and runnersCongratulations to the organizing committee and the many people who helped or attended. |
#11
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The 2015 event will be on March 28.
If anyone wants to help, send me a PM.
__________________
Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/ |
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