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Drugs and Drug Treatments ATG, Cyclosporine, Revlimid, Vidaza, Dacogen, ...

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  #1  
Old Thu Feb 17, 2011, 04:15 AM
Birgitta-A Birgitta-A is offline
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Thumbs up Vidaza in the UK at last

Hi all members in the UK
Now NICE has endorsed Vidaza:
http://uk.reuters.com/article/2011/0...71G01920110217
Kind regards
Birgitta-A
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  #2  
Old Thu Feb 17, 2011, 05:51 AM
squirrellypoo squirrellypoo is offline
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Thanks for posting this, Birgotta, that's great news that the appeal worked!

(Also, I had no idea there were only 700 of us MDS patients in the whole of England and Wales - I swear I see more than that just in the Kings HOP!)
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding! I've run 5 marathons now!! (PB 3:30!)
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  #3  
Old Thu Feb 17, 2011, 12:22 PM
Neil Cuadra Neil Cuadra is offline
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For those who don't know, NICE is the National Institute for Health and Clinical Excellence, formerly the National Institute for Clinical Excellence, in the U.K.

NICE makes recommendations to the NHS (National Health Service, NHS Scotland, and NHS Wales).
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Old Fri Feb 18, 2011, 09:43 AM
mausmish mausmish is offline
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It's about time! Thanks for posting this great news, Birgitta.
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Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
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  #5  
Old Fri Feb 18, 2011, 01:40 PM
Birgitta-A Birgitta-A is offline
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Vidaza

Hi Karen,
Yes, I read a post from a member from the UK that got her Vidaza paid by special sponsors but she had to have high risk disease to get the drug free.
Kind regards
Birgitta-A
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  #6  
Old Fri Feb 18, 2011, 02:50 PM
riccd2001 riccd2001 is offline
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From the Pink Sheet

A few more details about Celgene methods...

http://www.oncologystat.com/news/Cel...mendation.html


And the fight goes on and on.
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Ric: Low-risk MDS (blasts <4%); 4 cycles Revlimid no positive response; PRBC transfusion dependent; so far, 392'units' over 8 3/4 years; BMB #4 (15/04/01) shows evolution to AML (blasts 20-30%) 47,XY,del(5) (q22q35),+21[24][cp24]/46,XY(1).
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  #7  
Old Sat Feb 19, 2011, 01:16 PM
rose mcmillin rose mcmillin is offline
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Thats great news. So glad to hear it.
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Husband diagnosed 10/08 RAEB-2 Started Vidaza treatments in Jan 09 until now
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