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#1
Sun Dec 1, 2019, 02:05 AM
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9th Rebirthday!
Hello all. I don't check in often anymore but wanted to let everyone know that 9 years post transplant I am loving life and doing well!
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Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com 
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#2
Mon Dec 2, 2019, 12:56 AM
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Great to see that you are well Karen. Thank you for the update. You are a great inspiration!
Dan
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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#3
Mon Dec 2, 2019, 12:13 PM
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That's great new Karen. Thanks for checking in and wishing you more good health and happiness in the years to come.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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#4
Mon Dec 2, 2019, 01:54 PM
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Hi, Karen. So great to hear from you! I'm glad to know you're doing well. Wishing you good health and happiness for years to come.
Ruth
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Diagnosed AA 10/96, MDS/RA 6/98, MUD/BMT 10/6/98
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#5
Sun Dec 8, 2019, 09:02 PM
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Glad to hear from that you are doing so well! Happy ReBirthday!!
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58 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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#6
Mon Dec 9, 2019, 03:47 PM
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Hi Karen. We are all happy to know you are doing well. I have my 8 yr anniversary on Dec 17. Many more years for all of us!
Mario
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MARIO, 52, DIAG IN 2011 W/ PNH, MUD IN DEC 2011. MINI TRANS PSL DENVER/ SOME MILD GVHD. CURRENTLY TAKING JAKAFI FOR GVHD.
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#7
Thu Dec 12, 2019, 05:21 AM
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Yay! - well done mausmish. That's great news. I remember you way back when I first got on the forum in 2011.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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