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Old Fri Mar 24, 2017, 06:08 AM
Naive Naive is offline
Join Date: Jul 2016
Location: Gold Coast, Queensland, Australia
Posts: 33

I have an old portacath (inserted over 9 years ago for long term antibiotics) which has started to cause chest pain over the last 3 months or so, when it's being used. I had a blood transfusion today and I got the chest, neck and arm pain again. My port hasn't given blood drawback in about 5 years.

Long story short..I had a portagram today which showed some leakage of contrast in the distal catheter but within the SVC. I was told it was of no significance and not to be concerned but I'm still not happy with it. It's swollen and bruised and leaked blood under the plastic dressing.

I've attached a photo. Last week when I had an infusion and it hurt, the Doctor said I had decreased air entry in the right lung the next day. I had to have Salbutomol nebulisers to fix the problem. I don't usually get breathing/lung problems.

Am I right to be concerned?
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Old Fri Mar 24, 2017, 11:21 AM
Neil Cuadra Neil Cuadra is online now
Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,292
This summary has a list of "warning signs". I'm surprised that your doctor doesn't think it's time to remove the portacath, which is a straightforward procedure.

I've read about people keeping portacaths for years, but 9 years seems like the upper end of the scale. This fact sheet from the MPS Society says "Most surgeons say most ports will last anywhere from two to six years."

Another site advises that "Your port may stay in place for as long as it functions correctly, or as long as your doctor determines that you need it." If you don't think yours is functioning correctly, then I think your concern is warranted.
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Old Fri Mar 24, 2017, 07:54 PM
Naive Naive is offline
Join Date: Jul 2016
Location: Gold Coast, Queensland, Australia
Posts: 33
Thank you Neil. I dislike it when I raise a concern to a Doctor and I'm made to feel as if I'm being neurotic. As you can see it's swollen and bruised, leaked fluid and I've had lung problems twice now when I've had the pain. It certainly isn't my imagination.

I'm going to insist that it's replaced. You've given me the encouragement I need to stand up for myself. I appreciate it.

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