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  #1  
Old Fri Apr 7, 2017, 01:34 PM
Marrowforums Marrowforums is offline
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Join Date: Jul 2006
Posts: 691
Site Availability April 2017

The Marrowforums forums were unavailable for 5 to 6 hours today, due to changes by our service provider.

We have restored forum availability and we will continue to monitor the situation.

Our apologizes for the inconvenience.
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  #2  
Old Fri Apr 7, 2017, 02:27 PM
bailie bailie is offline
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Join Date: Dec 2013
Location: McMinnville,OR
Posts: 810
Thank you Neil for all of this. We really appreciate the effort you have made through the years.
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age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML),12 months Vidaza and dasatinib. Now(SCT-Day+910) Hgb 13.1, RBC 4.03, WBC 9.9,Plt 175,Neut. 6.73, no leukemia, BCR-ABL mutation(Q252H), no blasts, 100%donor. On Vidaza and ponatinib.
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  #3  
Old Fri Apr 7, 2017, 06:55 PM
Neil Cuadra Neil Cuadra is online now
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Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,292
Quote:
Originally Posted by bailie View Post
Thank you Neil for all of this. We really appreciate the effort you have made through the years.
Thanks. The way I see it, when people are fighting a life-threatening disease, the last thing they need is a computer problem to add to their struggles.
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  #4  
Old Mon Apr 10, 2017, 08:05 PM
Cheryl C Cheryl C is offline
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Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 751
Thank you very much from me too, Neil. Marrowforums is a life-line as I don't know anyone else with MDS. I've learned so much, and the courage of those who fall into the high-risk category is inspiring.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. On watch and wait since Feb 2012. IVIg 4-weekly. BMB Feb 2014 - no blast transformation. 2016 still stable tho' more frequent infections.
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