Home         Forums  

Go Back   Marrowforums > Community > Living with Illness
Register FAQ Search Today's Posts Mark Forums Read

Living with Illness Coping with disease, getting help, dealing with family, staying optimistic, quality of life, hospice care

Reply
 
Thread Tools Search this Thread
  #1  
Old Wed Nov 23, 2011, 06:52 PM
cheri cheri is offline
Member
 
Join Date: Nov 2010
Location: Tuckahoe New Jersey
Posts: 243
Happy Thanksgiving!

I am grateful to be here to celebrate another Thanksgiving, and quite thankful for the friends I have found here on Marrowforums!

Wishing you all safe travels and a wonderful holiday!
Cheri
__________________
Cheri Age 54; dx Oct 2009 AML, induction chemo only;dx MDS July 2010,- PRBC transfusion dependent; Results BMB 8/4/11--- 6-8% blasts; Danazol 100 mg 3xday; quit Exjade/ GI distress; platelets holding 40's; Fluctuation in blasts in blood--Neupogen 3-4xweek; off Revlimid again! Procrit weekly
Reply With Quote
  #2  
Old Wed Nov 23, 2011, 07:10 PM
Greg H Greg H is offline
Member
 
Join Date: Sep 2010
Location: North Carolina
Posts: 660
Happy Thanksgiving from NC!

Hey Cheri!

I was just thinking it might be nice to put up a Thanksgiving greeting -- and wouldn't you know, you'd beat me to it!

I hope you have a truly great one.

And I hope all you BMFWs (Bone Marrow Failure Warriors) have a wonderful holiday, complete with family, friends, turkey, tofurkey, or whomever and whatever you chose for your celebration.

Personally, I expect to use the outrageously pleasant weather here in NC to clean up the garden, rake a few leaves, and use those to start a new compost pile -- and to be grateful my ANC count is high enough to engage in such sport.

Happy Thanksgiving to you all!

Greg
__________________
Greg, 59, dx MDS RCMD Int-1 03/10, 8+ & Dup1(q21q31). NIH Campath 11/2010. Non-responder. Tiny telomeres. TERT mutation. Danazol at NIH 12/11. TX independent 7/12. Pancreatitis 4/15. 15% blasts 4/16. DX RAEB-2. Beginning Vidaza to prep for MUD STC. Check out my blog at www.greghankins.com
Reply With Quote
  #3  
Old Wed Nov 23, 2011, 07:13 PM
cheri cheri is offline
Member
 
Join Date: Nov 2010
Location: Tuckahoe New Jersey
Posts: 243
__________________
Cheri Age 54; dx Oct 2009 AML, induction chemo only;dx MDS July 2010,- PRBC transfusion dependent; Results BMB 8/4/11--- 6-8% blasts; Danazol 100 mg 3xday; quit Exjade/ GI distress; platelets holding 40's; Fluctuation in blasts in blood--Neupogen 3-4xweek; off Revlimid again! Procrit weekly
Reply With Quote
  #4  
Old Wed Nov 23, 2011, 08:14 PM
kgtuck kgtuck is offline
Member
 
Join Date: Mar 2011
Location: Sylva & recently Waynesville, North Carolina USA
Posts: 47
Wink Best wishes

"Back at you! And, like you, Greg, I'm enjoying this unusually warm weather in western NC. My husband and I have learned so much this year from your website! Also, the help from Birgitta and Neil, and others who are :continuing to do research! I'm also thankful for the drug "Dacogen" that continues to work for me!
__________________
66 yr female;diag 6/09; MDS, unspecified, normal cytogenetics: blasts 10%; successful Dacogen;every 4th wk.; as of Aug.'12 changing to every 5th wk., stable at Hgb 12-14/platelets 200-300/wbc 2.-3.
Reply With Quote
  #5  
Old Wed Nov 23, 2011, 08:21 PM
triumphe64 triumphe64 is offline
Member
 
Join Date: Feb 2008
Location: Dallas, Texas
Posts: 437
Remember - Cranberry sauce is red. Eat a lot of it. It can't hurt.
__________________
Dallas, Texas - Age 75 - Pure Red Cell Aplasia since March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
Reply With Quote
  #6  
Old Wed Nov 23, 2011, 08:45 PM
donna j. donna j. is offline
Member
 
Join Date: Sep 2011
Location: long island, new york
Posts: 110
dr. said I could have a glass of wine. It'll be red! Happy Thanksgiving to all my new friends.

Donna
__________________
f68 MDS; abmt 1/12. ABO mismatch 11 mos. (70) transf. Ferr 3-5k. 8 phlebot. AGVHD to CGVHD. skin,eyes. lungs as of 10/13. muscle weakness &osteo long term steroids.photopheresis 2x wk as of 3-15.pred 20 eod,acyclovir, mepron, voriconazole, pantropazole, lisinopril, montelukast, anoro, azithromycin.
Reply With Quote
  #7  
Old Wed Nov 23, 2011, 11:16 PM
mausmish mausmish is offline
Member
 
Join Date: Mar 2010
Location: Maryland
Posts: 450
Happy Thanksgiving everyone! Last Thanksgiving I was in the hospital getting conditioning chemo for my BMT. One week from today will be my first rebirthday! I am very thankful to be here.
__________________
Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
Reply With Quote
  #8  
Old Thu Nov 24, 2011, 10:36 AM
squirrellypoo squirrellypoo is offline
Member
 
Join Date: Nov 2008
Location: London, UK
Posts: 458
Happy Thanksgiving! I'm doing an expat feast at the weekend since we don't get the day off work here.

So I celebrated in my own way with a quick 5km run this morning instead! Thanksgiving 2008 I was too ill to barely walk anywhere, and Thanksgiving 2009 wasn't much better with my daily antifungal IVs, so I make sure I'm thankful for every healthy second I've got these days.
__________________
36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding! I've run 5 marathons now!! (PB 3:30!)
Reply With Quote
  #9  
Old Thu Nov 24, 2011, 11:37 AM
Dick S Dick S is offline
Member
 
Join Date: Jan 2008
Location: Florida
Posts: 187
Happy Thanksgiving to one and all my fellow Bone Marrow Failure survivors. We're still here aren't we?
__________________
Dick S, diagnosed Feb. 2008 with MDS. Last BMB April 2016. New diagnosis is CMML stage 1.
Reply With Quote
  #10  
Old Wed Nov 30, 2011, 06:15 PM
Robi1Knobi Robi1Knobi is offline
Member
 
Join Date: Mar 2007
Location: Austin, Texas USA
Posts: 98
Thankful to be alive

Happy Thanksgiving & Holidays to all my marrow friends ). I'm happy every day I wake up and feel good enough to do anything, either go to work, or have a pj day on my day off! Best of luck to all of you & here's hoping 2012 will be a healthier one for all of us!
__________________
Linda, 47 yo, married, mother of a teen, moderate AA w/ TERC mutation (2007 NIH), Pulmonary Fibrosis 2010, was on Danazol study (Aug 2011-2013 & restarted 9/14/15), last transfusion May 2011. On Promacta now. Needing a double lung and stem cell transplant.
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Going to Transplant and HAPPY!!! kathrnclark Transplants 3 Tue Aug 30, 2011 05:30 PM
Happy New Year from Marrowforums Marrowforums Site Announcements 0 Wed Dec 26, 2007 04:05 PM


All times are GMT -4. The time now is 03:27 AM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2017, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright 2006-2016 Marrowforums.org