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Living with Illness Coping with disease, getting help, dealing with family, staying optimistic, quality of life, hospice care

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  #1  
Old Thu Dec 22, 2011, 06:03 PM
cheri cheri is offline
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Join Date: Nov 2010
Location: Tuckahoe New Jersey
Posts: 243
Seasons Greetings!

Happy Holidays All!

Since 2 years ago today, I was in the middle of a 3 week coma and on life support, I am especially grateful to experience another Christmas and the prospect of another year of living with MDS....

I wish you all a happy, healthy 2012!

Merry Christmas,
Cheri
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Cheri Age 54; dx Oct 2009 AML, induction chemo only;dx MDS July 2010,- PRBC transfusion dependent; Results BMB 8/4/11--- 6-8% blasts; Danazol 100 mg 3xday; quit Exjade/ GI distress; platelets holding 40's; Fluctuation in blasts in blood--Neupogen 3-4xweek; off Revlimid again! Procrit weekly
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  #2  
Old Thu Dec 22, 2011, 06:42 PM
triumphe64 triumphe64 is offline
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Join Date: Feb 2008
Location: Dallas, Texas
Posts: 437
Merry Christmas and Happy New Year all!
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Dallas, Texas - Age 75 - Pure Red Cell Aplasia since March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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  #3  
Old Thu Dec 22, 2011, 07:02 PM
slip up 2 slip up 2 is offline
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Join Date: Feb 2011
Location: ontario canada
Posts: 135
And Happy Holidays to all as well...Cheri a year ago my husband was in the hospital and did not know if he would see a New Year....the 1st snowfall we had this year, the hat was off, face up and tounge out to taste the first snow flake....and this year he even has been able to snorkle with the fish....
to another healthy year with MDS....

Thanks to all who have gone before with trials....
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  #4  
Old Thu Dec 22, 2011, 08:13 PM
DanL DanL is offline
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Join Date: Dec 2010
Location: Denver, CO
Posts: 516
Thank you Cheri. Best wishes to you in 2012.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. No longer experiencing nor treating CGVHD. Working on fixing long-term side effects of AVN in hips and cataracts in eyes. Life is good!
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  #5  
Old Fri Dec 23, 2011, 01:56 AM
mausmish mausmish is offline
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Join Date: Mar 2010
Location: Maryland
Posts: 450
Happy Holidays to you, Cheri. I'm very happy that you're still with us - always enjoy reading your posts.
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Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
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  #6  
Old Fri Dec 23, 2011, 04:11 AM
cathybee1 cathybee1 is offline
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Join Date: Aug 2010
Location: Fort Jones, California
Posts: 399
Love your post.
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Catherine, wife of Bruce age 75; diagnosed 6/10/11 with macrocytic anemia, neutropenia and mild thrombocytopenia; BMB suggesting emerging MDS. Copper deficient. Currently receiving procrit and neuopogen injections weekly, B12 dermal cream and injections, Transfusions ~ 5 weeks.
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  #7  
Old Fri Dec 23, 2011, 06:44 AM
Birgitta-A Birgitta-A is offline
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Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
2012

Cheri, A very Happy and Healthy 2012 to you too !
Kind regards
Birgitta-A
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  #8  
Old Fri Dec 23, 2011, 09:05 AM
kgtuck kgtuck is offline
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Join Date: Mar 2011
Location: Sylva & recently Waynesville, North Carolina USA
Posts: 47
Happy Holidays

Hope for improving health for all of us in the coming year, and Thanx to everyone for all of the info coming across this forum and sharing your stories and situations!
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66 yr female;diag 6/09; MDS, unspecified, normal cytogenetics: blasts 10%; successful Dacogen;every 4th wk.; as of Aug.'12 changing to every 5th wk., stable at Hgb 12-14/platelets 200-300/wbc 2.-3.
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  #9  
Old Fri Dec 23, 2011, 03:56 PM
tytd tytd is offline
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Join Date: Jul 2009
Location: Southeast, USA
Posts: 132
Cheri, Your stories are always inspiring and helpful. Here's hoping for continued improvement for you and all of us with bone marrow failure. Thanks tytd
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possible low to int-1 MDS with predominant thrombocytopenia, mild anemia, dx 7/08, in watch and wait mode
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  #10  
Old Fri Dec 23, 2011, 11:56 PM
Al's Wife Al's Wife is offline
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Join Date: Jun 2010
Location: Jackson, Georgia USA
Posts: 205
Cheri,

We wish you and all our other forum members a very Merry Christmas and a Happy New Year. I'm so glad for each and every one of you who keep me uplifted and give me hope for my husband as he struggles with MDS.
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Linda, Al's wife, 75; dx MDS 5/2010; Vidaza 6/2010; ARRY614 & Sapacitabine clinical trials at Emory, no results, stopped 12/2011. Had BMB at NIH on 6/5/12, blasts 10-15% so he's not eligible for trial there. :eek Promacta trial, Tampa, blasts 25-30% 8/17/12 AML, trying Dacogen now and praying.
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  #11  
Old Sat Dec 24, 2011, 02:36 PM
akita akita is offline
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Join Date: Nov 2010
Posts: 110
Dear cheri and all,

i wish you a happy christmas, some quiet days and a bliss of health, - and good perspectives for your health for the upcoming year.

Kind regards,

Margarete

(This ist a song performed by the brother of a former schoolmate from me)
http://www.youtube.com/watch?v=RlbqE...f=mfu_in_order
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Margarete, 54, living in Vienna, Austria,
MDS/AML M2, diagnosed 9/2007, then Chemos, aSZT 4/2008, chronic GVHD
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