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Living with Illness Coping with disease, getting help, dealing with family, staying optimistic, quality of life, hospice care

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Old Thu Aug 30, 2012, 03:05 AM
tserdogan tserdogan is offline
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Join Date: Aug 2009
Posts: 127
Avascular Necrosis

Hi again,

İs there anyone here have an avascular necrosis problem.

My stage is 2c.My febur has not collapsed yet but it is very near.
My doctors told me surgery is must Or if i wait , febur collaps and hip replacement is the last chance for me.

3,5 year from transplant and my blood counts are so close to normal range.
I need some opinions.İs surgery risk for me???
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Old Thu Aug 30, 2012, 10:28 AM
DanL DanL is offline
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Join Date: Dec 2010
Location: Denver, CO
Posts: 514
I developed AVN from high-dose prednisone when I was being treated for the ITP that I did not have. When diagnosed, mine was fairly early with about 20% damage to the femoral heads. It has progressed a little based on how I feel. The orthopedic surgeon that I spoke to is supposedly one of the best in Denver and he said that based on the science that he knows, the only real fix for this is genuine traditional hip replacement and that the "mini" replacements and drill techniques are not proven and don't last very long.

So, as with my MDS, it is watch and wait.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. No longer experiencing nor treating CGVHD. Working on fixing long-term side effects of AVN in hips and cataracts in eyes. Life is good!
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