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  #1  
Old Sat May 26, 2018, 02:40 AM
Naive Naive is offline
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Join Date: Jul 2016
Location: Gold Coast, Queensland, Australia
Posts: 72
Port question.

I was wondering how often I should take my temperature when i have my port accessed and are at home. Iím having to connect and disconnect each day..the needle is staying in for a week. My neutrophils are low but not critical. I got conflicting advice from day care. One nurse said itís not necessary and one said every 4 hours. The written information says to present to ED if I get a fever but no regime suggested.

Thank you.

Carol.
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  #2  
Old Sun May 27, 2018, 01:59 PM
Barb Barb is offline
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Join Date: Jan 2018
Location: Columbus, Ohio
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Hi Carol,

I generally only take my temp if I do not feel well. Then I do take it evey few hours, though my provider told me 4 times daily is enough when not feeling well. My ANC is currently at 60, so definately in critical range. I do it the same whether my port is accessed or not.

Do whatever you are comfortable with. You have enough on your plate. If taking your temp more often gives you oeace do it. If it is an annoyance don't. I figure if we have to deal with this disease, we might as well be vomfortable and do what we need to allieviate anxiety.
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Barb. Diagnosed MDS 5q- in 2006. Stable until 2018. Dx high risk AML complex karyotype with TP53 mutation. On Dacogen, moving towards transplant.
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  #3  
Old Sun May 27, 2018, 08:40 PM
Naive Naive is offline
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Join Date: Jul 2016
Location: Gold Coast, Queensland, Australia
Posts: 72
Thanks Barb. Youíre right. I shouldnít overthink things. If I feel well, then I should just forget it. That should be my barometer with everything.

Very logical and practical.

Thanks again.

Carol.
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