How is IPSS score determined ??

[annmonster]

I don't know my IPSS score yet, although I have been told that I am "low risk" MDS.

What are the factors that determine this scoring system ?? I know that one of them is the blast percentage ....

Thanks for any help .....

Ann

[Greg H]

Hey Ann!

There's a good description on this page:

http://www.marrowforums.org/mds.html

And a handy tool to help you calculate your own here:

http://www.marrowforums.org/tools/mds_classification.html


The IPSS has four categories: Low Risk, Intermediate -1, Intermediate-2, and High Risk. The first two are considered "lower risk;" the others "higher risk."

Take Care!

Greg

[annmonster]

Thanks, Greg !!!

As always, you are super-helpful .... and a great resource for information !!!!

Ann

[Chirley]

I used the calculation tool and came up with an IPPS of 1.5 as Intermediate 2 but then I don't have MDS!! I have Cu deficiency.

BMB shows dysplasia in reds and whites, blood has 2 sometimes 3 cytopenias and ringed sideroblasts of 78%, blasts of 7% with one other chromosomal abnormality (del 15 q). add them together you get the 1.5


It makes you realize why it's so hard for doctors to diagnose hematological disorders.

Regards

[Greg H]

Hey Ann!

If you have any trouble figuring out your number, guide a shout and I'll try to help.

There are a couple of newly-published revisions to the standard IPSS, plus a couple of other scoring systems, including a very promising one from MD Anderson that has been validated in a separate population at the Cleveland Clinic.

If you are interested in those, let me know and I'll point you towards them.

Take Care!

Greg