Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > AA
Register FAQ Search Today's Posts Mark Forums Read

AA Aplastic anemia

Reply
 
Thread Tools Search this Thread
  #1  
Old Wed Aug 4, 2010, 12:39 AM
lfhb1 lfhb1 is offline
Member
 
Join Date: Aug 2010
Location: Gig Harbor, WA
Posts: 5
Lost Battle with AA

My husband was diagnosed with AA in November of 2008. He had 2 atg treaments. A tremendous amount of blood and platelette transfusions. January 2010 he had a BMT. Got out of the hospital in February and Lost his battle March 7, 2010. He was a brave and strong man and I will truely miss him. I will continue to help fight this disease.
Reply With Quote
  #2  
Old Wed Aug 4, 2010, 03:12 AM
Neil Cuadra Neil Cuadra is offline
Owner
 
Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,556
lfhb1,

I'm so sorry to hear of your husband's struggle and that he did not survive his transplant. In another forum thread you said he was 51. He was taken from you way too soon.

Even with your brief message I can tell that you are as brave as he was from the fact that you are here telling us what happened, and that you are willing to keep up the fight against aplastic anemia as so many other patients continue their own battles.
Reply With Quote
  #3  
Old Wed Aug 4, 2010, 08:15 AM
Susan L Susan L is offline
Member
 
Join Date: Jun 2010
Location: Ga
Posts: 245
lfhb1

I am sorry for your loss. Thank you for helping with the fight.
__________________
Susan Patient, 58, MDS, UPDATED 9/13
Now have RAEB-2, Firbrosis 3+, blasts 18% peripheral, 10 - 14% blasts marrow, chromosomes now T 1:21, trisonomy 16 and 1.- Match found ---10/10 -couldn't believe when I heard - Tentative day is 1/09th!!!! Admit date changed to 11/12. WOW -
Reply With Quote
  #4  
Old Thu Aug 5, 2010, 12:48 PM
tserdogan tserdogan is offline
Member
 
Join Date: Aug 2009
Posts: 127
i am so sad for you and your wife.
Reply With Quote
  #5  
Old Thu Aug 5, 2010, 11:28 PM
Gloria J Gloria J is offline
Member
 
Join Date: Sep 2009
Location: New Jersey
Posts: 53
My deepest condolences to you and your family. Your devotion to your husband shows in your willingness to continue his fight. Always savor the good memories from before you ever heard of AA.
__________________
Gloria, early 50s, dx SAA Summer 2007, Pred July 07, Rituxan Aug 07, dx PNH Feb 2008, ATG Apr 08, began Soliris 5/31/11
Reply With Quote
  #6  
Old Fri Aug 13, 2010, 02:40 PM
Lbrown Lbrown is offline
Member
 
Join Date: Oct 2009
Posts: 361
Very sorry to hear about your husband. Hope you are coping ok.

Deb
Reply With Quote
  #7  
Old Fri Aug 13, 2010, 03:12 PM
rose mcmillin rose mcmillin is offline
Member
 
Join Date: Dec 2009
Location: Fort Myers, Fl Lee Cnty
Posts: 46
Quote:
Originally Posted by lfhb1 View Post
My husband was diagnosed with AA in November of 2008. He had 2 atg treaments. A tremendous amount of blood and platelette transfusions. January 2010 he had a BMT. Got out of the hospital in February and Lost his battle March 7, 2010. He was a brave and strong man and I will truely miss him. I will continue to help fight this disease.
I am so sorry to hear of your loss. This disease is a monster. I hope that some good memories will help you through. I feel this website is like a family so let us know if you need anything. Sincerely, Rose
__________________
Husband diagnosed 10/08 RAEB-2 Started Vidaza treatments in Jan 09 until now
Reply With Quote
  #8  
Old Tue Aug 17, 2010, 09:10 PM
lfhb1 lfhb1 is offline
Member
 
Join Date: Aug 2010
Location: Gig Harbor, WA
Posts: 5
Thanks everyone for your kind words. I cherish all my memories from before AA and all that he went through. I stay as strong as possible, knowing thats what he would have wanted. I do have alot of emotional issues I'm dealing with and I feel that I had it right along with him, but I survivied. So in his honor I will help fight this and help anyone along the way with anything I can. It is a terrible disease. God Bless everyone.
Reply With Quote
  #9  
Old Wed Aug 18, 2010, 04:34 PM
rose mcmillin rose mcmillin is offline
Member
 
Join Date: Dec 2009
Location: Fort Myers, Fl Lee Cnty
Posts: 46
Quote:
Originally Posted by lfhb1 View Post
Thanks everyone for your kind words. I cherish all my memories from before AA and all that he went through. I stay as strong as possible, knowing thats what he would have wanted. I do have alot of emotional issues I'm dealing with and I feel that I had it right along with him, but I survivied. So in his honor I will help fight this and help anyone along the way with anything I can. It is a terrible disease. God Bless everyone.
If your emotional issues start to get out of hand consider talking to a grief counselor. Its really helped me deal with just the aspects of the disease. Bless you and talk care. Rose
__________________
Husband diagnosed 10/08 RAEB-2 Started Vidaza treatments in Jan 09 until now
Reply With Quote
  #10  
Old Wed Aug 18, 2010, 06:29 PM
paulaespada paulaespada is offline
Member
 
Join Date: Mar 2008
Location: Azores, Portugal
Posts: 91
I'm sorry!!!

I've read your post several times and now I found courage to tell you how sorrow I am.

When I read it yesterday I started to cry.

Please accept my condolences.

Sincerely
__________________
Preview
Paula Espada - wife of Jorge Espada, diagnosed AA in June 2008, ATG, cyclosporine until Janury 2010, relapse and 2nd ATG June 2010
Reply With Quote
  #11  
Old Wed Aug 25, 2010, 12:51 AM
lfhb1 lfhb1 is offline
Member
 
Join Date: Aug 2010
Location: Gig Harbor, WA
Posts: 5
Thank you Paula, wasn't meaning to make anyone cry, I do that enough myself. I post to help deal with the loss and I promised him that I would help figh this disease, which I am trying. So if anyone needs to talk or needs questions I am here, I dealth with every aspect of his healthcare and learned more than he knew. I want to be here for anyone that needs someone, not for pity. But I appreciate your feeling my pain. I do TRUELY MISS HIM each and every day. Our 30th wedding anniversary is next month and that was out goal to get to, so next month with be hard and everyones encouragement is also welcome. THANK YOU!
Reply With Quote
  #12  
Old Wed Nov 3, 2010, 05:24 PM
paulaespada paulaespada is offline
Member
 
Join Date: Mar 2008
Location: Azores, Portugal
Posts: 91
Sorry for late answer

Quote:
Originally Posted by lfhb1 View Post
Thank you Paula, wasn't meaning to make anyone cry, I do that enough myself. I post to help deal with the loss and I promised him that I would help figh this disease, which I am trying. So if anyone needs to talk or needs questions I am here, I dealth with every aspect of his healthcare and learned more than he knew. I want to be here for anyone that needs someone, not for pity. But I appreciate your feeling my pain. I do TRUELY MISS HIM each and every day. Our 30th wedding anniversary is next month and that was out goal to get to, so next month with be hard and everyones encouragement is also welcome. THANK YOU!

My dear!


I'm sorry I didn't answered before but in dealing with my husband treatment for 2nd relapse I didn't notice your post answering mine. I started to cry not for pity. I have so many mactched feelings.
Everyday I deal with that question: And if my husband lose his battle? He is the love of my life, my companion, my huardian angel??? (O.K., Crying again, but I need to cry).
After his 2nd ATG, he's on cyclosporine but there is a drop on his platelets - 130 to 84. I'm terrified if it's other relapse. I want to be strong but sometimes I don't know how.

May God help you in your sorrow.

Sincerely.
__________________
Preview
Paula Espada - wife of Jorge Espada, diagnosed AA in June 2008, ATG, cyclosporine until Janury 2010, relapse and 2nd ATG June 2010
Reply With Quote
  #13  
Old Sat Nov 27, 2010, 11:36 PM
lfhb1 lfhb1 is offline
Member
 
Join Date: Aug 2010
Location: Gig Harbor, WA
Posts: 5
Paula,

I know how hard it is to be strong, it was hard for me. Make sure to take a few minutes for yourself when you can, thats what helped me. I tried not to show my pain to help him. Duane went through 2 ATG treatments and neither one took. He went through a BMT very well, but because of the chemo and having no immune system, infections over took. I cried too. I still do each and every day. He too was my whole world even more than I could tell you. Keep strong and keep me posted. I would love to be there for you and yours.
Lori
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
25 years after AA, now I've got AA and PNH squirrellypoo Tell Your Story 14 Fri Dec 14, 2018 10:52 AM
My Dearest Earl lost his battle with MDS - died Friday AM at 1:30 milliken2 MDS 34 Thu Feb 21, 2013 12:58 PM
My Dad Lost His Battle with MDS... sandem01 MDS 14 Tue Dec 4, 2012 12:42 PM
I feel that I lost the Battle! layla g MDS 9 Sun Nov 13, 2011 02:41 PM
My dad lost his battle dee MDS 6 Sat Aug 7, 2010 12:58 AM


All times are GMT -4. The time now is 07:32 PM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org