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MDS Myelodysplastic syndromes

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Old Sat Apr 7, 2018, 08:55 PM
cdseibold cdseibold is offline
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MDS and Breast cancer

It is well recognized that breast cancer treatments can be a factor in getting MDS. I am on watch and wait for MDS. This month I was diagnosed with a new breast cancer😂 in the same breast I had cancer 20 years ago.
My oncologist is telling me that I cannot have a second radiation due to previous treatment. He also says that chemo is not an option since I have MDS.
Anyone heard to this challenge.

To further complicate the situation I have no further lymph nodes to help predict whether cancer has spread.

Thoughts?
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Carol, age 75, diagnosed with MDS 9/2012, on wait and watch, recently had blood values drop probably due to Arimixdex, values coming back, but still serious fatigue, recent bone marrow text showed only 2% blasts
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Old Sun Apr 8, 2018, 12:28 AM
Neil Cuadra Neil Cuadra is offline
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Carol,

Given your combination of health conditions, would you consider getting a second opinion from a doctor who is experienced with MDS? For example, you might consider going to Fairview Hospital at the University of Minnesota in Minneapolis or the Mayo Clinic in Rochester.
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Old Mon Apr 9, 2018, 04:52 PM
cdseibold cdseibold is offline
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Talking Good advise

I have used Mayo for second opinion when initially diagnosed. UnMN does a lot of stem cell transfers. They have been doing surveys on MDS patients for a number of years. So either would be good for 2nd opinions. So excellent advise.

I meet with my hematologist here on the 18th. Glad I went with the mastectomy as they found a second tumor in the breast tissue.

Thanks for your input.

Carol
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Carol, age 75, diagnosed with MDS 9/2012, on wait and watch, recently had blood values drop probably due to Arimixdex, values coming back, but still serious fatigue, recent bone marrow text showed only 2% blasts
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