Home         Forums  

Go Back   Marrowforums > Practical Issues > General Health Issues
Register FAQ Search Today's Posts Mark Forums Read

General Health Issues Diet and appetite, sleep and fatigue, pain management, exercise, etc.

Reply
 
Thread Tools Search this Thread
  #1  
Old Wed Nov 3, 2010, 05:26 AM
Julianna Julianna is offline
Member
 
Join Date: Feb 2010
Location: Victoria, Australia
Posts: 184
Question A question for the ladies...

Hello. Julie here again and still struggling with low platelets. Last count 26 (but it's holding there so that is ok I guess).

Having "monthly" issues. Well, actually it is more of a continual saga, not just each month. I had one of my ovaries taken out at the end of last year because of endometriosis. Won't bore you with all the details but I am now a bit concerned about bleeding between periods. Not too much, but enough to frighten me.

I went to my GP who gave me a thrush treatment to try, but it doesn't seem like thrush to me. Anyone else had issues like this with low platelets?

It makes me feel kinda fragile... especially knowing that bleeding could get quite serious if I'm not on top of it (if you know what I mean). I am going to make another appointment with my GP and push for further testing. Continual discharge isn't something I should be trying to live with.

Thanks for any thoughts...
__________________
Julie (38yrs); dx AA 1996 & treated w/ATG, cyclosporine & G-CSF; 2010 dx int-1 secondary MDS, low platelets, on prevention antibiotics, fevers of unknown origin, MUD found for BMT when the time is right, which is now! MDS transformed to AML after many infections.
Reply With Quote
  #2  
Old Fri Nov 12, 2010, 08:44 AM
Gloria J Gloria J is offline
Member
 
Join Date: Sep 2009
Location: New Jersey
Posts: 53
Hi Julie,

Has your gynecologist talked with you about endometrial ablation? Although you're young, that might be a possible solution for 'monthly female' issues. I'd be happy to share what I've learned if you'd like to email me.

best wishes,

Gloria
__________________
Gloria, early 50s, dx SAA Summer 2007, Pred July 07, Rituxan Aug 07, dx PNH Feb 2008, ATG Apr 08, began Soliris 5/31/11
Reply With Quote
  #3  
Old Mon Nov 15, 2010, 10:08 AM
susansr susansr is offline
Member
 
Join Date: Feb 2010
Location: Boston, Massachusetts
Posts: 49
Female monthly issues!!

Quote:
Originally Posted by Julianna View Post
Hello. Julie here again and still struggling with low platelets. Last count 26 (but it's holding there so that is ok I guess).

Having "monthly" issues. Well, actually it is more of a continual saga, not just each month. I had one of my ovaries taken out at the end of last year because of endometriosis. Won't bore you with all the details but I am now a bit concerned about bleeding between periods. Not too much, but enough to frighten me.

I went to my GP who gave me a thrush treatment to try, but it doesn't seem like thrush to me. Anyone else had issues like this with low platelets?

It makes me feel kinda fragile... especially knowing that bleeding could get quite serious if I'm not on top of it (if you know what I mean). I am going to make another appointment with my GP and push for further testing. Continual discharge isn't something I should be trying to live with.

Thanks for any thoughts...
Hi. I have AA; my platelets hover around 27,000 and never rose beyond 30 since my ATG treatment back in February 10. I've had female issues right from the start. Would be happy to share what my gyno and hematologist suggested, and what's been happening since. Contact me at new email address the2leftys@gmail.com.; good luck, Susan
Reply With Quote
  #4  
Old Tue Nov 16, 2010, 04:23 AM
Julianna Julianna is offline
Member
 
Join Date: Feb 2010
Location: Victoria, Australia
Posts: 184
Thank you ladies.

Hope my post wasn't to personal for everyone. But it is an issue that I'm sure quite a few ladies would like to understand more about. Especially with platelets like ours! I seem to be a bit better at the moment. But am being a bit more careful with heavy lifting and physical activites since this has started being a problem lately.

I have to wait for my Gyno appointment, so for now I need to just pray and wait. And hope for the best. Take care, my friends. xx Julie
__________________
Julie (38yrs); dx AA 1996 & treated w/ATG, cyclosporine & G-CSF; 2010 dx int-1 secondary MDS, low platelets, on prevention antibiotics, fevers of unknown origin, MUD found for BMT when the time is right, which is now! MDS transformed to AML after many infections.
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
how do i post a question for all MDS groups? sundco Site Comments 3 Sat Mar 31, 2018 11:16 AM
RCMD to RAEB-1 - and a CT question carrieridge MDS 4 Fri Oct 23, 2015 08:45 PM
Transplant question marmab AA 12 Thu Jun 5, 2014 09:52 AM
New question..blood blister in mouth? Anyone? Grifmat General Health Issues 1 Tue Apr 16, 2013 02:58 PM
ATG, one week out...Yuck! Liver function question. Ryan Jay AA 8 Tue Aug 24, 2010 03:14 PM


All times are GMT -4. The time now is 03:33 PM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org