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#1
Sun Mar 18, 2012, 12:24 AM
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My sweet David
I haven't visited the forum in a while. My sweet David passed away on Dec. 7th after his MDS turned to AML. I continue to keep you all in my heart. I hope that someday there won't be a need for this forum. That a cure will come. In the meantime, keep fighting, loving and living. Sincerely, Rose
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#2
Sun Mar 18, 2012, 02:05 AM
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Our deepest condolences, Rose. You and David have been part of our online family. We know how patient you were when David was on Vidaza, and we hope his treatments gave you more time together.
You know better than anyone how many ups and downs patients and their families have to face. Over the past few years you kept your head up despite the fear of the unknown that we all face. You showed us your positive attitude while offering understanding and encouragement to other forum members. We wish that generosity had been rewarded with more success for you and David. We know that your memories of David will stay with you forever. Thank you for having the courage to post and let us know what happened.
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#3
Sun Mar 18, 2012, 02:28 AM
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My Condolances
Sorry to know abt david. May his soul rest in peace and may God give you strength to face these tiring times.
Regards, Neel
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Father age 64 diagnosed with MDS RAEB-2, with 15%-18% blasts in October 2010. Only had blood and platelet transfusions. Ayurvedic treatment which showed result for arnd 5 months. Started Tahlidomide 100 mg started on 22 nd April 2011. Revolade 50 mg started on 2 nd april 2012.
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#4
Sun Mar 18, 2012, 06:17 AM
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David
Dear Rose,
How sad that David at last lost the fight with our disease. Now he has got peace. Warm regards Birgitta-A
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#5
Sun Mar 18, 2012, 11:54 AM
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I pray for you to have strength and comfort.
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Lori, female age 53 dx MDS-RAEB-II 15% blasts 10-2010. Induc Chemo 10/14/10 for 7 days - results unacceptable so 5 additional days chemo. Complete Remission 12/10/10!! SCT 1-11-11 remission achieved!!! BMB 1-29-11 100% Donor!  cgvh eyes,skin (Caringbridge.org/visit/loripatrick)
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#6
Sun Mar 18, 2012, 12:30 PM
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So sorry to learn of David's passing Rose. May the wonderful memories you shared sustain you.
Take care,
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Nicole, mom to Evan (20); diagnosed SAA November 2007, hATG mid-November 2007, no response after 6 months, unrelated 9/10 BMT June 2008, no GVH, health completely restored thanks to our beloved donor Bryan from Tennessee. www.caringbridge.org/visit/evanmacneil
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#7
Sun Mar 18, 2012, 10:57 PM
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Rose
You will be in our thoughts and I also hope there will no longer be a need for this forum someday. For now wishing you strength in this difficult time and that only the best memories rise to the surface in the days and months to come.
Big hugs, Debbie
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Debbie, wife of Mike age 58, diagnosed RAEB 2 April 2010. Initial blast count somewhere between 10-15% then 20% after two treatments of Dacogen. Completed induction therapy 8/2/2010. BMB 8/31/10 - 4% blasts. SCT 10/1/2010. Relapsed in 10/2014, second transplant from same donor on 12/31/2014.
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#8
Mon Mar 19, 2012, 01:28 PM
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Rose,
Thank you for your message. I am so sorry that David lost his battle with MDS/AML. It is such a difficult journey for all involved. I hope time and good memories will bring you peace and comfort. Karen
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Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
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#9
Mon Mar 19, 2012, 02:17 PM
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I was so sorry to read of David's passing. You are certainly in our thoughts and prayers. God bless you.
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Linda, Al's wife, 75; dx MDS 5/2010; Vidaza 6/2010; ARRY614 & Sapacitabine clinical trials at Emory, no results, stopped 12/2011. Had BMB at NIH on 6/5/12, blasts 10-15% so he's not eligible for trial there. :eek Promacta trial, Tampa, blasts 25-30% 8/17/12 AML, trying Dacogen now and praying.
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#10
Mon Mar 19, 2012, 11:49 PM
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I am so very sorry that David lost his fight. Thank you for posting, Rose. And for your wonderful words of encouragement. There are a lot of us out here...
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Catherine, wife of Bruce age 75; diagnosed 6/10/11 with macrocytic anemia, neutropenia and mild thrombocytopenia; BMB suggesting emerging MDS. Copper deficient. Currently receiving procrit and neuopogen injections weekly, B12 dermal cream and injections, Transfusions ~ 5 weeks.
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#11
Tue Mar 20, 2012, 01:08 PM
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David
My condolences to you. This forum consists of a tight group that shares a similar concern, so it makes it seem like one of our own when someone passes.
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Jil, dtr of Wilma age 90; dx May 2011; MDS refractory cytopenia IPSS Int 1; platelets 35, WBC 3.5 & RBC 3.06
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#12
Tue Mar 20, 2012, 08:32 PM
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I am so sorry.
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hubby 73, dx NHL 2001, CNS involvement. SCT (auto) 5/08 [dx UTUC renal pelvis, 2010/surgeries/MMC], MANY recurrences, chemos, surgeries, rad. dx t-MDS 3/11: IPSS 1.5 (Int-2); MDA 11, RCMD trilineage, inc. Fe, ring sideroblasts, 7q del/mono 7 (51.5%), 46,XY,t(6,17)(p22;q25)[4]/45,XY,-7[4]/46,XY[12].
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