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#1
Thu Jul 5, 2012, 08:40 PM
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6 months after 2nd round ATG
I'm hitting the end of the 6 month waiting period to see if the (second) ATG is working. My numbers are better, and I haven't had a transfusion since April 1st. My hgb stays around 9, my platelets hover at 60, but I've been getting neupogen shots to keep up my white count.
I seem to have hit a plateau in the improvement. I'm wondering what is going to happen now; another round of ATG, move to transplant, or nothing? Has anyone else hit this wall? I know I need to talk to my dr, but I like to hear a patient's opinion too.
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Amber, age 24, diagnosed w/ SAA and treated w/ horse ATG 7/11, rabbit ATG 1/12, on cyclosporine. Started Desferal infusion for iron overload 7/12. 
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#2
Fri Jul 6, 2012, 01:05 PM
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Hi Amber,
Do you know what your ANC would be roughly without the Neupogen shots? What is your ANC on Neupogen and what's the dose of Neupogen?
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Nicole, mom to Evan (20); diagnosed SAA November 2007, hATG mid-November 2007, no response after 6 months, unrelated 9/10 BMT June 2008, no GVH, health completely restored thanks to our beloved donor Bryan from Tennessee. www.caringbridge.org/visit/evanmacneil
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#3
Fri Jul 6, 2012, 01:49 PM
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My ANC will drop to 0.5 without the shot, possibly lower but they keep giving me the shot, mainly because I went back to work part time and am afraid of getting sick. The shot gets my ANC over 1.0 and my white count a little above 2.0. I'm not sure on the dosage though.
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Amber, age 24, diagnosed w/ SAA and treated w/ horse ATG 7/11, rabbit ATG 1/12, on cyclosporine. Started Desferal infusion for iron overload 7/12.
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