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Tue May 2, 2017, 03:33 PM
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2017 Pnh Patient Meetings
https://rarediseases.org/for-patient...ting/pnh-2017/
Very informative and a great chance to meet others w/ PNH.
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MARIO, 52, DIAG IN 2011 W/ PNH, MUD IN DEC 2011. MINI TRANS PSL DENVER/ SOME MILD GVHD. CURRENTLY TAKING JAKAFI FOR GVHD. 
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