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Old Tue Mar 11, 2014, 12:25 AM
Marrowforums Marrowforums is offline
Join Date: Jul 2006
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One-day Patient Conference in Philadelphia, PA, May 17, 2014

A free one-day patient conference will be held in Philadelphia, PA on Saturday, May 17, 2014. The conference, hosted by the Aplastic Anemia & MDS International Foundation (AA&MDSIF), is one of six one-day patient conferences in 2014.

This will be a multi-track conference for AA, MDS, and PNH patients and their families. This conference and the conference in Miami in November are the only AA&MDSIF patient conference on the east coast this year.

The conference will include parallel (simultaneous) sessions on AA, MDS, and PNH, sessions to help you live with and cope with these diseases, and professionally-facilitated support sessions with your peers.

Conference attendance is free. Breakfast and lunch are included. Discounted hotel rates are available to those who want to stay overnight.

Conference Program

Come hear about the latest information about diagnosis, treatment (including transplants), and medical research from leading experts, including these physicians:
  • Dr. Monica Bessler, University of Pennsylvania
  • Dr. Gail Roboz, New York Presbyterian Hospital
  • Dr. Isabel Schuermeyer, Cleveland Clinic
Patients and family members will also be able to
  • meet medical experts face-to-face
  • hear about the latest treatments and medical research
  • learn skills for managing life with a bone marrow failure disease
  • have your questions answered
  • learn how to be your own advocate for the best care
  • get to know other patients and family members like yourselves
  • attend professionally-facilitated support sessions
A special lunch program will let conference attendees meet and talk, with an emphasis on ways to stand up for your health.

Diagnosis, Treatment, and Managing the New Normal - Patient and Family Conference

Saturday, May 17, 2014, from 8:30am to 5:00pm
Check-in begins at 7:30am.
Renaissance Philadelphia Airport Hotel (Google map)
500 Stevens Drive, Philadelphia, PA 19113
610-521-5900 (main), 888-236-2427 (toll-free reservation line)

Discounted hotel rates are available through Thursday April 17, 2014.
Hotel parking is free.
See other hotel information on the AA&MDSIF event page.
Use the online registration form to register for the conference.
The registration deadline is Wednesday, May 7, 2014.

For more information see the AA&MDSIF event page.

If you plan to attend this conference, post in this thread to let other attendees know to look for you!

After the conference, let us know what you thought of the event.
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