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Old Mon Jul 14, 2014, 07:43 PM
Marrowforums Marrowforums is offline
Join Date: Jul 2006
Posts: 822
One-day Patient Conference in Detroit, MI, July 26, 2014

A free one-day patient conference will be held in Detroit, MI on Saturday, July 26, 2014. The conference, hosted by the Aplastic Anemia & MDS International Foundation (AA&MDSIF), is one of six one-day patient conferences in 2014.

This will be a multi-track conference for AA, MDS, and PNH patients and their families.

The conference will include parallel (simultaneous) sessions on AA, MDS, and PNH, sessions to help you live with and cope with these diseases, and professionally-facilitated support sessions with your peers.

Conference attendance is free. Breakfast and lunch are included. Discounted hotel rates are available to those who want to stay overnight.

Conference Program

Come hear about the latest information about diagnosis, treatment (including transplants), and medical research from leading experts, including these physicians:
  • Dr. Hetty Carraway, North Carolina Central University
  • Dr. Bogdan Dumitriu, National Institutes of Health
  • Dr. Jack Goldberg, Penn Presbyterian Medical Center
  • Dr. Jaroslaw Maciejewski, Cleveland Clinic
  • Dr. David Margolis, Children's Hospital of Wisconsin
  • Dr. Mark Moyad, University of Michigan Medical Center
Patients and family members will also be able to
  • meet medical experts face-to-face
  • hear about the latest treatments and medical research
  • learn skills for managing life with a bone marrow failure disease
  • have your questions answered
  • learn how to be your own advocate for the best care
  • get to know other patients and family members like yourselves
  • attend professionally-facilitated support sessions
A special lunch program will let conference attendees meet and talk, with an emphasis on ways to stand up for your health.

Diagnosis, Treatment, and Managing the New Normal - Patient and Family Conference

Saturday, July 26, 2014, from 8:30am to 5:00pm
Check-in begins at 7:30am.
Detroit Metro Airport Marriott (Google map)
30559 Flynn Drive, Romulus, MI 48174
734-729-7555 (main), 800-228-9290 (toll-free reservation line)

Discounted hotel rates are available through Monday July 7, 2014.
Hotel parking is free.
See other hotel information on the AA&MDSIF event page.
Use the online registration form to register for the conference.
The registration deadline is Wednesday, July 16, 2014.

For more information see the AA&MDSIF event page.

If you plan to attend this conference, post in this thread to let other attendees know to look for you!

After the conference, let us know what you thought of the event.
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Old Mon Jul 14, 2014, 07:52 PM
Marrowforums Marrowforums is offline
Join Date: Jul 2006
Posts: 822

There are still registration openings for this conference so sign up if you can be there. Don't miss the chance to hear from and speak to the well-respected Jaroslaw Maciejewski and other experts at this conference.

Young survivors age 18 to 30 will be able to talk to the ever-popular David Margolis in the morning. He'll have a Question & Answer session in the afternoon for parents.
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