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#1
Sat Aug 13, 2011, 02:50 PM
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About to meet my son Evan's bone marrow donor!
Hi friends,
Just wanted to drop a quick line to let you know we've travelled from Ontario, Canada down to Tennessee to meet the man that saved my son's life with his bone marrow donation back in June of 2008. I am so excited and nervous too...we should be wrapping our arms around him in about 30 minutes!
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Nicole, mom to Evan (20); diagnosed SAA November 2007, hATG mid-November 2007, no response after 6 months, unrelated 9/10 BMT June 2008, no GVH, health completely restored thanks to our beloved donor Bryan from Tennessee. www.caringbridge.org/visit/evanmacneil 
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#2
Sat Aug 13, 2011, 04:18 PM
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Nicole, what a wonderful gift Bryan has given Evan. I am so glad you are getting to meet Bryan and thank him personally. God bless all of you. Such a beautiful story.
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Linda, Al's wife, 75; dx MDS 5/2010; Vidaza 6/2010; ARRY614 & Sapacitabine clinical trials at Emory, no results, stopped 12/2011. Had BMB at NIH on 6/5/12, blasts 10-15% so he's not eligible for trial there. :eek Promacta trial, Tampa, blasts 25-30% 8/17/12 AML, trying Dacogen now and praying.
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#3
Sat Aug 13, 2011, 08:31 PM
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Nicole and family,
We're excited for you and hope to hear a full report!
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#4
Sat Aug 13, 2011, 10:59 PM
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What a wonderful, unique experience for all! Enjoy every moment!
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Cheri Age 54; dx Oct 2009 AML, induction chemo only;dx MDS July 2010,- PRBC transfusion dependent; Results BMB 8/4/11--- 6-8% blasts; Danazol 100 mg 3xday; quit Exjade/ GI distress; platelets holding 40's; Fluctuation in blasts in blood--Neupogen 3-4xweek; off Revlimid again! Procrit weekly
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#5
Sun Aug 14, 2011, 02:29 AM
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Oh wow Nicole!!! I hope it was amazing!!! You are such a wealth of knowledge and so kind and supportive. I just wish you and Evan all the best in your meeting of Evan's donor. I was thinking of you guys and can't wait to hear about it. Laura
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Laura; dx SAA; MUD transplant June 18, 09; ITP June, 2011; fighting multiple complications/GVHD and now low counts again...
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#6
Sun Aug 14, 2011, 05:15 AM
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That's exciting, Nicole! Please tell us how it goes. I hope he knows what an amazing thing he did and how much it must mean to you!
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-Lisa, husband Ken age 60 dx SAA 7/04, dx hypo MDS 1/06 w/finding of trisomy 8; 2 ATGs, partial remission, still using cyclosporine
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