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Transplants Bone marrow and stem cell transplantation

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Old Wed Nov 6, 2019, 10:26 PM
LoreneS LoreneS is offline
Join Date: Dec 2017
Location: Minneapolis
Posts: 3
One year post transplant

Our adult daughter (SAA) is one year past her haplo identical transplant. She entered a clinical trial out of John Hopkins, as there was no match and IST did not work. She is doing well, all blood numbers are normal, her blood type changed to donors, getting vaccinations and going back to work. Some minor issues with skin GVHD, and angry kidneys from tacrolimus. It has been a hard and long 3 year journey from the first emergency room to now. As so many write, don't give up hope. It is like night and day from getting blood and platelet transfusions every week, to this - of course, still not out of the woods yet, but, we can see the light through the trees, and it is getting lighter each week. There is hope.
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Old Thu Nov 7, 2019, 09:37 AM
David M David M is offline
Join Date: Sep 2009
Location: Fayetteville, TN
Posts: 70
Great News!!!

Great to hear this, LoreneS! Wonderful!
David M, reds/whites/plats slowly declining since 2000; hypo-cellular bone marrow; diagnosed Mild AA; low counts, but stable since 2009; watch and wait -- no treatments required to this point.
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Old Thu Nov 7, 2019, 05:34 PM
shadowii shadowii is offline
Join Date: Apr 2019
Posts: 38
Im happy for you!
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