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Transplants Bone marrow and stem cell transplantation

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Old Fri Apr 13, 2018, 01:04 AM
Heather8773 Heather8773 is offline
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Join Date: Jan 2013
Location: Houston, TX
Posts: 254
4 1/2 years post Transplant

Hello all
4 1/2 years post BMT
Today my husband had a check up and things are still continuing to normalize
Today he was cleared to stop taking his prophylactic antibiotics bc the WBCs have managed reach and stay in normal range the last few months!
The Platelets and Hemoglobin seemed to go into normal numbers with in a few months after transplant.
God bless you all on your journeys
Iím happy we all have eachother and a place to connect
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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Old Fri Apr 13, 2018, 01:56 AM
Neil Cuadra Neil Cuadra is offline
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Join Date: Jul 2006
Location: Los Angeles, California
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Congratulations, Heather and Ronald. Having a "safe" white count must be such a relief!

My wife and I used to feel good one day, worried the next day, and back and forth like that as we watched her white count fluctuate and eventually stabilize. To this date, we're still more careful about avoiding infections than the average person. It just became a habit to wash hands regularly, be wary of open buffet meals, try to avoid sick people on airplanes, and other precautions.
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Old Fri Apr 13, 2018, 06:22 PM
sstewart09 sstewart09 is offline
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Join Date: Feb 2013
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Thatís amazing news, Heather! Iím not happy about the circumstances surrounding how we started to communicate, but itís always been nice having a couple going through the same journey. As am sure you found, not many friends could relate to what was happening to us at the time. I wish nothing but the best for you and Ron😊
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Samantha, wife of Joe age 34; diagnosed vsaa 2012; MUD BMT February 2013
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