Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > PNH
Register FAQ Search Today's Posts Mark Forums Read

PNH Paroxysmal nocturnal hemoglobinuria

Reply
 
Thread Tools Search this Thread
  #1  
Old Thu Nov 22, 2007, 12:28 AM
Splitz Splitz is offline
Member
 
Join Date: Nov 2007
Location: Central coast of CA, USA
Posts: 4
pnh forum??

Does anyone know who administrates the site? I registered several days ago but have yet to receive the activation link. Any help appreciated,,
Thanks,

Lee:-)
Reply With Quote
  #2  
Old Thu Nov 22, 2007, 01:46 AM
Neil Cuadra Neil Cuadra is offline
Owner
 
Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,556
Are you referring to the PNH Support Group forums?

On their registration page it says
You will receive a confirmation email with a link to a page you should visit to activate your account in the next 24 hours.
so you clearly should have gotten the activation email by now. Their forum software could be having trouble, but a more likely explanation is that the activation email was sent but didn't reach you, probably due to email filtering.

Many Internet Service Providers filter email to weed out spam. Many consumers use their own email filters. These filters often think that forum activation messages, which are automatically generated form letters, are spam. So the messages get quarantined, deleted, or put in a "spam" or "junk" folder.

If you are using your own email filter, turn it off while you try again or tell it to allow email from pnhdisease.org.

Users of AOL have this problem more often than others, since AOL's filters are especially tough. If you are an AOL user, look in your Spam folder or add webmaster@pnhdisease.org to your Address Book so you'll get their messages from now on.

If this advice doesn't help, you can contact a PNH Support Group administrator at webmaster@pnhdisease.org.
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
8th Annual Walk for PNH in New York, September 22, 2013 Marrowforums News and Events 0 Sat Aug 10, 2013 01:16 PM
Possible Cure for PNH Tom Cramer PNH 16 Tue Aug 16, 2011 10:41 PM
PNH Webinar, September 2009 Marrowforums News and Events 0 Mon Sep 14, 2009 05:43 PM
PNH Webinar, May 2009 Marrowforums News and Events 0 Thu Apr 23, 2009 02:16 AM


All times are GMT -4. The time now is 11:36 PM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org