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#1
Wed Oct 12, 2011, 11:26 AM
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Exjade side effects
Hi all,
I started taking Exjade 2 weeks ago for a ferritin level of 3000. Has anyone else experienced constant headaches? They started about 12 hrs after the first dose. Not extreme, but enough to take painkillers and I hate to add to my never-ending list of drugs! Thanks in advance, Polly x (SAA Dec 2010, currently managed with cyclosporin and blood transfusions) 
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#2
Wed Oct 12, 2011, 02:02 PM
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First, make sure you are not dehydrated. You may need to up your fluid intake. John did not get headaches.....his problem was nausea. He would have to stop the Exjade for about week and then resume it once his nausea went away. With Exjade, you can stop it to see if the headaches go away and then restart again. Many symptoms don't come back when you restart therapy. If they do, then you may want to try a reduced dose.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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#4
Wed Oct 19, 2011, 04:55 AM
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this "crazy itchy rash" will go away, I promise, at least after two weeks.....so just hold out!
Experienced greetings, Bergit
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female, 54, MDS-RCMD, trisomy 8, dx 2006, response to EPO and therafter VPA only for a couple of months, transfusion-dependent twice a month, watch&wait for SCT somewhen in the future with my brother as a donor 
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#6
Thu Jan 26, 2012, 09:54 AM
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Exjade available....
I have 3 unopened bottles of 90 500mg pills that were for my father's MDS treatment. He passed away and I would like to give this expensive medicine to someone that can use it. If you are interested, please contact me. tcarnazza@comcast.net
Last edited by a091495 : Thu Jan 26, 2012 at 09:57 AM. Reason: update info
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