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#1
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Day 3160!
Hi all -
I've been reading around the site and decided to post. I was diagnosed with SAA on my tenth birthday. My brother was a complete match and my transplant was set for June. All in all, I was very blessed with great doctors, family, and as much faith as a 10 year old can have. I'm very healthy now. Other than some really cute scars (HA) from my broviacs no one would ever know what I had been through. I wanted to post a little hope. And encouragement.. for all of you dealing with the illnesses of your children, spouses, friends, and other loved ones - thank you. You are the driving force behind their recovery. For those fighting the good fight you have my respect and prayers. Much love to all of you - feel free to message/email me with questions/venting/any thing I can do to help. I may be almost 10 years removed from this but I refuse to forget when so many other people are still fighting. - Taylor |
#2
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Thank you for sharing your experience.
Knowing that sameone is at 3160 day after transplant is good case for thinking and to get ready to transplant. |
#3
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Taylor, thank you for the ray of sunshine! Hugs!
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Cindy, wife of Ron 66 dx w/MDS(RARS)Feb'09,Vidaza 13mons. BMB 2/10 -5q/increased blasts. Watch/wait May-Jul10. Revlimid Jul-Aug10:A-Fib. BMB Aug18, 12%blasts. MDS to AML. Induction completed 9/21/10. BMB Oct10:CR. Consolidaton:10/25/10. Dacogen Dec27-29. SCT on Hold. Fevers/Nt sweats Jan11. |
#4
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Taylor - thanks so much for your post.
My son was 3 when he was diagnosed - he is just over a year out of transplant. It is so great to hear your life is normal. I worry about what this is going to bring for his future. Thanks so much for the hope you bring!
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Mother of Ethan, diagnosed with SAA at age 3-1/2 Dec. 2008; Treated with ATG(h) Dec 2008 and ongoing Cyclosporine. MUD BMT 11/10/2009, 10/10 match |
#5
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Taylor, Thank you for sharing. Most people on this site are grabbing for positives. Stay strong and thank you to Godl Lori
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Lori, female age 53 dx MDS-RAEB-II 15% blasts 10-2010. Induc Chemo 10/14/10 for 7 days - results unacceptable so 5 additional days chemo. Complete Remission 12/10/10!! SCT 1-11-11 remission achieved!!! BMB 1-29-11 100% Donor! cgvh eyes,skin (Caringbridge.org/visit/loripatrick) |
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