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#1
Tue Jun 5, 2018, 06:22 PM
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Anyone have any encouraging news after a relapse?
Hi all,
Mum had her SCT just under a year ago. Whilst the last few months have been terrific, she has been having a relapse and as of 4 weeks ago, her bloods have been dropping dramatically. Just wondering if anyone has any success after relapse? Thanks 
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#2
Tue Jun 5, 2018, 09:19 PM
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I don't have any experience to share with you but I'm sorry your mom is relapsing.
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Joanne, 65F, 8/17 dx Primary MDS-EB1, Pancytopenia; 6/19 MPN w/CMML characteristics, dr calling it AML even w/blasts <20%; 7/19 Induction w/Vyxeos resulting in complete remission with incomplete blood count recovery.
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#3
Tue Jun 5, 2018, 10:26 PM
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Yes, I have two wonderful friends who both relapsed after about a year. Before the relapse, their first transplant was going so well, just like your Mother's. They had no GVHD.
After the relapse, they both did a second transplant (cord blood), and a year later both are healthy, one is even back working as a chef! Hope this helps. Meri
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Female born 1965, diagnosed MDS RAEB1 in August 2016, watch and wait for 9 months. Sibling match - Stem cell transplant in 2017.
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