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AA Aplastic anemia

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  #1  
Old Thu Dec 16, 2010, 08:56 PM
Ryan Jay Ryan Jay is offline
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Film about Jordan Culbreath's fight

Hey folks.

I don't know if this has been on the AA/MDS radar screen, but there´s a documentary coming out about Princeton running back Jordan Culbreath in the spring. It looks really interesting and features Dr. Young.

Has anyone been in contact with the director? It would be great to have a screening at one of the conferences.

Here is the trailer:

http://www.runningthrough.com/
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Ryan Jay: 38-yo, dx SAA: 7/25/10, ATG: 8/10/10. CR with counts still rising. HGB: 13, Plt: 137 WBC 5.1 ANC
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  #2  
Old Thu Dec 16, 2010, 10:31 PM
Lisa Z Lisa Z is offline
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Thanks for sharing the link to the video clip. Will look forward to the entire video this spring!
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Dx. 6/08 with AA, then changed shortly thereafter to MDS. Campath trial at NIH March '09 and have been transfussion independent since June '09
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  #3  
Old Thu Dec 16, 2010, 11:27 PM
susansr susansr is offline
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Quote:
Originally Posted by Ryan Jay View Post
Hey folks.

I don't know if this has been on the AA/MDS radar screen, but there´s a documentary coming out about Princeton running back Jordan Culbreath in the spring. It looks really interesting and features Dr. Young.

Has anyone been in contact with the director? It would be great to have a screening at one of the conferences.

Here is the trailer:

http://www.runningthrough.com/
Ryan: thanks for informing us about this story; so what is the miracle drug that Jordan was given?
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Old Fri Dec 17, 2010, 12:19 AM
Ryan Jay Ryan Jay is offline
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Jordan's Miracle Drug

Well,

If you read his Caringbridge journal, he also had a rough case of PNH and had to take Soliris. So, I think they're talking about that given the context.
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Ryan Jay: 38-yo, dx SAA: 7/25/10, ATG: 8/10/10. CR with counts still rising. HGB: 13, Plt: 137 WBC 5.1 ANC
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