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MDS Myelodysplastic syndromes

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  #176  
Old Thu Jan 21, 2021, 01:34 AM
Cheryl C Cheryl C is offline
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Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 843
AML relapsed

I have been told not to have the Covid vaccine - at this early stage anyway. We are nowhere near any hot spots.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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  #177  
Old Thu Jan 21, 2021, 05:51 AM
Meri T. Meri T. is offline
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Join Date: Aug 2016
Location: Tokyo, Japan
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Wink

Cheryl,
I supposed it depends on the doctor, they know us a bit more, so asking them about the vaccine is the best way.
I'm glad you are not in the middle of the "hotspots" as I am now.
Please take care.
Meri
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Female born 1965, diagnosed MDS RAEB1 in August 2016, watch and wait for 9 months. Sibling match - Stem cell transplant in June 2017. Some GVHD skin, liver, stomach, esophagus.
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  #178  
Old Thu Feb 18, 2021, 05:11 AM
Meri T. Meri T. is offline
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Location: Tokyo, Japan
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Secondary cancer

My doctor suggested I test for other cancers, so I did, I tested for Lung, breast, uterine, and colon cancer. I couldn't stomach the valium so I didn't do the stomach cancer test. Then bone level tests and HepB and HepC were good. Just a bit anxious awaiting the results.

John, I hope you are alright, I heard Dallas was not doing well in this freeze. Keep safe.

Meri
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Female born 1965, diagnosed MDS RAEB1 in August 2016, watch and wait for 9 months. Sibling match - Stem cell transplant in June 2017. Some GVHD skin, liver, stomach, esophagus.
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  #179  
Old Sat Feb 20, 2021, 10:34 AM
John T John T is offline
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Join Date: Jan 2018
Location: North Texas
Posts: 11
Quote:
Originally Posted by Meri T. View Post
My doctor suggested I test for other cancers, so I did, I tested for Lung, breast, uterine, and colon cancer. I couldn't stomach the valium so I didn't do the stomach cancer test. Then bone level tests and HepB and HepC were good. Just a bit anxious awaiting the results.

John, I hope you are alright, I heard Dallas was not doing well in this freeze. Keep safe.

Meri
I am doing ok, power stayed on during most of the great Texas blackout of 2021. I also have solar panels, backup batteries, and a generator in case of power loss.

I was cleared by my transplant team for the Covid vaccine and am scheduled to receive my first dose this afternoon.

Where are you staying these days?
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