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Old Sun Oct 5, 2014, 03:30 PM
Marrowforums Marrowforums is offline
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One-day Patient Conference in Miami, FL, November 8, 2014

A free one-day patient conference will be held in Miami, FL on Saturday, November 8, 2014. The conference, hosted by the Aplastic Anemia & MDS International Foundation (AA&MDSIF), is one of six one-day patient conferences in 2014.

This will be a multi-track conference for AA, MDS, and PNH patients and their families.

The conference will include parallel (simultaneous) sessions on AA, MDS, and PNH, sessions to help you live with and cope with these diseases, and professionally-facilitated support sessions with your peers.

Conference attendance is free. Breakfast and lunch are included. Discounted hotel rates are available to those who want to stay overnight.

Conference Program

Come hear about the latest information about diagnosis, treatment (including transplants), and medical research from leading experts, including these physicians:
  • Dr. Jack Goldberg, Penn Presbyterian Medical Center
  • Dr. Bogdan Dumitriu, National Institutes of Health
  • Dr. David Margolis, Children's Hospital of Wisconsin
  • Dr. Steve Nimer, Sylvester Comprehensive Cancer Center of the University of Miami
  • Dr. Timothy Pearman, Robert H. Lurie Comprehensive Cancer Center of Northwestern University
  • Dr. David Steensma, Dana-Farber Cancer Institute of Harvard University
Patients and family members will also be able to
  • meet medical experts face-to-face
  • hear about the latest treatments and medical research
  • learn skills for managing life with a bone marrow failure disease
  • have your questions answered
  • learn how to be your own advocate for the best care
  • get to know other patients and family members like yourselves
  • attend professionally-facilitated support sessions
A special lunch program will let conference attendees meet and talk, with an emphasis on ways to stand up for your health.


Diagnosis, Treatment, and Managing the New Normal - Patient and Family Conference

When:
Saturday, November 8, 2014, from 8:30am to 5:00pm
Check-in begins at 7:30am.
Where:
Bonaventure Resort and Spa (Google map)
250 Racquet Club Road, Weston, FL 33326
954-389-3300 (main), 800-327-8090 (toll-free reservations)

Discounted hotel rates are available through Thursday October 9, 2014.
Hotel parking is available at daily rates, with parking vouchers provided.
See other hotel information on the AA&MDSIF event page.
Registration:
Use the online registration form to register for the conference.
The registration deadline is Wednesday, October 29, 2014.

For more information see the AA&MDSIF event page.

If you plan to attend this conference, post in this thread to let other attendees know to look for you!

After the conference, let us know what you thought of the event.
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  #2  
Old Mon Oct 6, 2014, 06:22 PM
Data Data is offline
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Join Date: Sep 2014
Location: Florida
Posts: 245
Will be attending

My wife and I will be attending. We will be staying at the Bonaventure hotel.

Data
__________________
Prostate Cancer: Treated in early 2013 with HDR Brachytherapy. MDS-RCMD: Oct 2014. Biopsies: 46,XY,t(7;18)[2]: 46,XY,del(7)( q22)[3]: 45,XY,-7[6]: 45,XY,-7[10]: 45,XY,-7[13]. HSCT in April 2016.

Last edited by Data : Tue Oct 7, 2014 at 02:46 PM.
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Old Fri Oct 17, 2014, 12:34 AM
Marrowforums Marrowforums is offline
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Parents of pediatric patients should view the personal invitation video from Dr. David Margolis.

At the Patient and Family Conference, he'll be leading a question and answer session for parents of pediatric patients. You won't want to miss it!
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