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  #1  
Old Sun Oct 21, 2018, 03:55 PM
Bossywife Bossywife is offline
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Rigors at night

My husband has been having rigors (shaking) at night with no fever. He is not cold. His blood work is the same as usual (low WBC, platelets and slightly low hgb ).
He sees the doctor this week, but not the bone marrow specialist until Feb.

Has anyone else experienced this?
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Husband (61) dx RAEB1 Apr 2015 after long term bad CBCs (first discovered Apr 2008 after an unknown infection had him hospitalized), currently on watch & wait with monthly bloodwork. Myeloid Gene Panel testing done Aug 2017, showed nothing worrisome. CEBPA mutation
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Old Sun Oct 21, 2018, 08:34 PM
Sally C Sally C is offline
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I did a search for rigors and there are diseases that can cause that. Maybe research it on the internet.
All the best,
Sally
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Old Sun Oct 21, 2018, 11:09 PM
Bossywife Bossywife is offline
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I was just asking if anyone else has experience with it.

I did google it, but I also am pretty confident it is a symptom of his MDS, because he had it the day he was hospitalized and diagnosed, just wanted to know if anyone else has had this symptom and what it was (with regards to the MDS itself) may be causing it.

I think I might misunderstand what this forum is for.
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Husband (61) dx RAEB1 Apr 2015 after long term bad CBCs (first discovered Apr 2008 after an unknown infection had him hospitalized), currently on watch & wait with monthly bloodwork. Myeloid Gene Panel testing done Aug 2017, showed nothing worrisome. CEBPA mutation
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  #4  
Old Mon Oct 22, 2018, 09:18 AM
Sally C Sally C is offline
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Being of a curious nature I did a search on rigors and thought I would reply to your post. Your question to the forum - in my opinion - is exactly what the forum is for. I just thought I would share with you what I found out.
My husband did get the rigors when he was receiving Campath back in 2009 but I didn't think that would apply to your husband.
All the best,
Sally
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  #5  
Old Wed Oct 24, 2018, 09:24 AM
allank allank is offline
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There is a thread I believe right now on the MDS foundation website message board talking about shaking at night, there are others with this symptom, you may want to check out that message board. www.mds-foundation.org
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  #6  
Old Mon Mar 4, 2019, 11:57 PM
quantpsyc quantpsyc is offline
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Rigors!

Quote:
Originally Posted by Bossywife View Post
My husband has been having rigors (shaking) at night with no fever. He is not cold. His blood work is the same as usual (low WBC, platelets and slightly low hgb ).
He sees the doctor this week, but not the bone marrow specialist until Feb.

Has anyone else experienced this?
Bossywife, this was actually the symptom my husband was experiencing (probably a dozen times over 4 months) that got him to the doctor that led to his MDS diagnosis. None of the doctors could say for sure if it was a symptom of MDS. Not too much later he was also diagnosed with AFIB, and that was resolved quickly with an ablation (quickly because of the mds issue). He has not had the rigors since the the AFIB was resolved so I wonder if it was, perhaps, instead related to the developing cardiac issue?
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Kathleen, adoring wife of Ed 67 yo, Dx April 2017 MDS RAEB2, no chromosomal mutations, as of August 2017 only supplement therapy, living and loving each day.
October 2018 started Decitabine, "exceptional response", MUD HSCT May 7, 2019.
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