Home         Forums  

Go Back   Marrowforums > Practical Issues > Questions and Answers
Register FAQ Search Today's Posts Mark Forums Read

Questions and Answers Not sure where to post a question? Post it here.

Reply
 
Thread Tools Search this Thread
  #1  
Old Sun Apr 29, 2018, 06:56 PM
Rebecca K Rebecca K is offline
Member
 
Join Date: Jun 2017
Location: Boulder, CO
Posts: 9
low hemoglobin 1 year after stem cell transplant

I am wondering if anyone has experienced what I have and might have a creative solution. I am one year out from an otherwise very successful stem cell transplant for MDS. My sister's stem cells are fully engrafted and my WBCs and platelets are solid. I still however have low hemoglobin and I have 2-3 transfusions a month. My doc thinks my strommal cells were damaged when I had breast cancer 20 years ago (chemo caused the MDS) but she thinks they are slowly healing. We tried promacta, steroids, and immunosuppressants. Anyone else have this situation and can shed light? I would be very grateful

Rebecca
Reply With Quote
  #2  
Old Tue May 1, 2018, 12:16 AM
DanL DanL is offline
Member
 
Join Date: Dec 2010
Location: Denver, CO
Posts: 538
I can't say that I had the same exact circumstances, but I had low blood counts for over a year until I got PCP about 1.5 years out and the doctor gave me about 3 shots of neupogen. Since that time, all of my counts stabilized and have been close to or above low normal.

I don't know if there is any true causality, but the timing worked that way for me. Prior to that, my HgB was hanging out around 11 or 12, WBC always between 2 and 4, and platelets below 100. I am now 4 years out, have 17.2 HgB, WBC between 4.5 and 9, and platelets around 140.

It might be worth the conversation.
__________________
MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. No longer experiencing nor treating CGVHD. Working on fixing long-term side effects of AVN in hips and cataracts in eyes. Life is good!
Reply With Quote
  #3  
Old Sun May 13, 2018, 01:03 PM
Rebecca K Rebecca K is offline
Member
 
Join Date: Jun 2017
Location: Boulder, CO
Posts: 9
wow

Thank you DAn.. what I would give for your hemoglobin. Mine is between 7.0 and 8.0... what is PCP?
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Timeline for Stem Cell Transplant Data Transplants 5 Fri Dec 18, 2015 06:58 PM
problem swallowing solid food after stem cell transplant dazbella Questions and Answers 3 Tue Sep 1, 2015 04:56 PM
1 year birthday of a second stem cell transplant. pbaxter Transplants 2 Tue Nov 1, 2011 02:36 PM
Study Discounts Age Limit on Stem Cell Transplants Marrowforums News and Events 0 Fri Dec 12, 2008 12:10 PM


All times are GMT -4. The time now is 04:42 PM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2018, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright 2006-2018 Marrowforums.org