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General Health Issues Diet and appetite, sleep and fatigue, pain management, exercise, etc.

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  #1  
Old Thu May 10, 2018, 01:53 PM
Barb Barb is offline
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Join Date: Jan 2018
Location: Columbus, Ohio
Posts: 28
Port Pain

I have been having pain under my Bard port. It feels as if there is a staple or suture or something under the port which presses into the underlying muscle when the outer lumen is used or when any pressure is put on the outer part of the port. My medical team seems to have never heard this complaint before. Something is clearly wrong. I do not want it removed, I just want this pain issue resolved. It works great.

Any ideas?
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Barb. Diagnosed MDS 5q- in 2006. Stable until 2018. Dx high risk AML complex karyotype with TP53 mutation. On Dacogen, moving towards transplant.
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  #2  
Old Fri May 11, 2018, 04:40 AM
Naive Naive is offline
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Location: Gold Coast, Queensland, Australia
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Have you had a portogram? I had pain in mine with every infusion (I had a 9 year old port) for about four months. Finally my Doctor ordered a chest X-ray and told me I had pneumonia and I had a course of intravenous antibiotics. I thought that was odd as it only hurt when my port was used, I had no fever and no funny breath sounds. Fast forward a couple more months and I still got the pain and insisted I have some investigations so I had a portogram which showed my port catheter had cracked and was leaking into the chest cavity. I had it removed and replaced in X-ray a few days later. I havenít had a problem since then.

I hope you get answers.

Carol
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Old Fri May 11, 2018, 12:08 PM
Barb Barb is offline
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Thanks Carol. I am not sure yet what they plan to do. It is a new port, put in just 2 months ago. One of the oncology nurses suggested possibly it is on a nerve. My CNP is contacting IVR qho put the port in.
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Barb. Diagnosed MDS 5q- in 2006. Stable until 2018. Dx high risk AML complex karyotype with TP53 mutation. On Dacogen, moving towards transplant.
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  #4  
Old Wed May 16, 2018, 11:47 AM
sstewart09 sstewart09 is offline
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My husband had pain and it was an infection.
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