Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > MDS
Register FAQ Search Today's Posts Mark Forums Read

MDS Myelodysplastic syndromes

Reply
 
Thread Tools Search this Thread
  #1  
Old Tue Jun 11, 2019, 03:30 PM
MPitzele MPitzele is offline
Member
 
Join Date: Jun 2019
Location: Minneapolis, MN USA
Posts: 1
MDS with 3 or More Chromosomal Abnormalities

Does anyone have any experience with this type of MDS. I am at the low normal end for white, red blood cells and hemoglobin with less then 2% blasts at this time.

It puts me in the intermediate risk classification.

Thanks for sharing if you have information.

Mark
Reply With Quote
  #2  
Old Tue Jun 18, 2019, 03:52 PM
Owen M Owen M is offline
Member
 
Join Date: Apr 2017
Location: High River, Alberta, Canada
Posts: 8
I have MDS Trilineage Hemaglobin WBC and Platelets. I was diagnosed in Oct 2012 with 4/% blasts and watch and wait until 2015. Hemoglobin took a dive and went on Epotine-alpha 40,000 units which I self inject once a week. Hemoglobin came back up but still half of normal. In 2017 WBC went down and then Platelets so started on Vidaza. Blasts at 6%. Have just finished 29th cycle of Vidaza ( 7 on and 21 off dosage 162.5) Blasts 3% 6 months ago. Last CBC MAY 31, Hemaglobin 135 , WBC 2.4 and Platelets 101 although my Platelets jump all over the place and a couple of times have been in low normal this year. Too old for a transplant but have never had a transfusion. A lack of stamina is my biggest obstacle.
Reply With Quote
  #3  
Old Tue Jun 18, 2019, 07:52 PM
Sally C Sally C is offline
Member
 
Join Date: Dec 2010
Location: Chesterfield, Va.
Posts: 447
Hi Owen,
Has your doctor done any iron studies? My husband has been in MDS remission for years but recently his reds were a bit low and so was his iron. He was struggling with fatigue as well. He was put on an iron supplement and has been much more energetic. The doctor said the reds were low due to his iron being low and is to be checked again in a few weeks. He is 73.
All the best,
Sally
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Chromosomal Abnormalities Ashleigh K. AA 3 Tue Dec 12, 2017 11:45 PM
MDS - VA assigns diagnostic code 7725 Tommy Daniels MDS 4 Sun Jan 22, 2017 03:51 PM
The MDS Beacon: New MDS Classification System Based On Chromosomal Abnormalities Sally C MDS 2 Sat Apr 7, 2012 06:08 PM


All times are GMT -4. The time now is 01:38 PM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2019, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright 2006-2019 Marrowforums.org