Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > MDS
Reload this Page Merry Christmas
Register FAQ Search Today's Posts Mark Forums Read

MDS Myelodysplastic syndromes

Reply
 
Thread Tools Search this Thread
  #1  
Old Sat Dec 24, 2011, 09:29 PM
bebop bebop is offline
Member
  
Join Date: May 2010
Location: Maysville Ga
Posts: 323
Merry Christmas
I wanted to take a minute to wish you all the very Merriest Christmas. Thank you all so much for being my rocks during my Dad's fight with this horrible disease. I am so blessed! Much love and peace to each and everyone of you.
Reply With Quote
  #2  
Old Mon Dec 26, 2011, 04:48 AM
cathybee1 cathybee1 is offline
Member
  
Join Date: Aug 2010
Location: Fort Jones, California
Posts: 399
Merry Christmas to you. And thank you for being here for us.
__________________
Catherine, wife of Bruce age 75; diagnosed 6/10/11 with macrocytic anemia, neutropenia and mild thrombocytopenia; BMB suggesting emerging MDS. Copper deficient. Currently receiving procrit and neuopogen injections weekly, B12 dermal cream and injections, Transfusions ~ 5 weeks.
Reply With Quote
  #3  
Old Mon Dec 26, 2011, 05:46 PM
bebop bebop is offline
Member
  
Join Date: May 2010
Location: Maysville Ga
Posts: 323
cathy after seeing 71 views and only one response I have to wonder lol. my pleasure to be here though for sure!
Reply With Quote
  #4  
Old Mon Dec 26, 2011, 06:22 PM
cheri cheri is offline
Member
  
Join Date: Nov 2010
Location: Tuckahoe New Jersey
Posts: 243
Always glad to see you here, Bebop...wishing you a happy, healthy 2012!
__________________
Cheri Age 54; dx Oct 2009 AML, induction chemo only;dx MDS July 2010,- PRBC transfusion dependent; Results BMB 8/4/11--- 6-8% blasts; Danazol 100 mg 3xday; quit Exjade/ GI distress; platelets holding 40's; Fluctuation in blasts in blood--Neupogen 3-4xweek; off Revlimid again! Procrit weekly
Reply With Quote
  #5  
Old Mon Dec 26, 2011, 09:06 PM
triumphe64 triumphe64 is offline
Member
  
Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
Quote:
Originally Posted by bebop View Post
cathy after seeing 71 views and only one response I have to wonder lol. my pleasure to be here though for sure!
These was another thread with this topic. It had more replies.
__________________
Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
Reply With Quote
  #6  
Old Tue Dec 27, 2011, 03:38 PM
bebop bebop is offline
Member
  
Join Date: May 2010
Location: Maysville Ga
Posts: 323
sorry but I didn't see it. I looked for one here though
Reply With Quote
  #7  
Old Tue Dec 27, 2011, 04:58 PM
mausmish mausmish is offline
Member
  
Join Date: Mar 2010
Location: Maryland
Posts: 453
Elaine - thank you for being here. Your continued strength and support mean a lot. Happy New Year!
__________________
Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
Reply With Quote
  #8  
Old Wed Dec 28, 2011, 08:05 PM
annmonster annmonster is offline
Member
  
Join Date: Nov 2011
Location: Los Angeles, Ca.
Posts: 46
A belated Merry Christmas to you as well !!! I think some of us haven't checked the forum because we've celebrating ....( hopefully ) .
Reply With Quote
  #9  
Old Wed Dec 28, 2011, 09:28 PM
triumphe64 triumphe64 is offline
Member
  
Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
That other thread was called "Season's Greetings". It had eleven entries.
__________________
Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
Reply With Quote
  #10  
Old Thu Dec 29, 2011, 02:00 AM
bebop bebop is offline
Member
  
Join Date: May 2010
Location: Maysville Ga
Posts: 323
Happy New Year to you all too!
Reply With Quote
  #11  
Old Thu Dec 29, 2011, 08:47 AM
Sally C Sally C is offline
Member
  
Join Date: Dec 2010
Location: Chesterfield, Va.
Posts: 470
Hey Bebop,
A belated Merry Christmas to you. And I wish you and all on the forums and their families a Happy and healthy! New Year.
Best wishes,
Sally
Reply With Quote
  #12  
Old Thu Dec 29, 2011, 02:45 PM
donna j. donna j. is offline
Member
  
Join Date: Sep 2011
Location: long island, new york
Posts: 110
I belatedly want to wish everyone a Merry Christmas, and look forward to a Happy New Year for all. I will be entering North Shore LIJ, New York on January 17, 2012 for pre transplant chemo conditioning and am scheduled to receive a bone marrow transplant from a generous and wonderful young woman on January 24, 2012. I am nervous and thankful for the opportunity. I hope to continue to communicate throughout the process, but please understand if there are gaps.
Thank you for the information and support from literally around the world, I wish you all the best of health and happiness.

Donna
__________________
f68 MDS; abmt 1/12. ABO mismatch 11 mos. (70) transf. Ferr 3-5k. 8 phlebot. AGVHD to CGVHD. skin,eyes. lungs as of 10/13. muscle weakness &osteo long term steroids.photopheresis 2x wk as of 3-15.pred 20 eod,acyclovir, mepron, voriconazole, pantropazole, lisinopril, montelukast, anoro, azithromycin.
Reply With Quote
  #13  
Old Thu Dec 29, 2011, 06:25 PM
annmonster annmonster is offline
Member
  
Join Date: Nov 2011
Location: Los Angeles, Ca.
Posts: 46
Donna...

I'll be sending thoughts and prayers your way during the upcoming transplant... wow !!... you sure got your transplant quickly !! How did you do that ?? Just curious .....

Ann
Reply With Quote
  #14  
Old Thu Dec 29, 2011, 06:34 PM
mausmish mausmish is offline
Member
  
Join Date: Mar 2010
Location: Maryland
Posts: 453
Happy New Year, everyone! Donna, best of luck to you with your transplant. I'll be looking forward to your postings when you're up to it.
__________________
Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
Reply With Quote
  #15  
Old Sat Dec 31, 2011, 12:40 PM
donna j. donna j. is offline
Member
  
Join Date: Sep 2011
Location: long island, new york
Posts: 110
Ann,

Shortly after I was diagnosed with MDS RAEB 1-2k in July 11 by a bone marrow biopsy, I was referred to a transplant specialist. Following a 2nd biopsy, the dr. explained the only ''cure'' would be a transplant. I did receive 2nd and 3rd diagnoses, including Dr. Steensma of Dana Farber in Boston and it was the same: a transplant was the most viable route, sooner rather than later. I thought I would have one by November, certainly by December, so for me January seemed like it took so long. It seems based on my overall health profile, that there was a window with the most chance for success. Following 3 rounds of Vidaza, which did not improve my blood count #s, but may have reduced or held the blasts at bay. I will have my 4th bone marrow biopsy this Wednesday for most current information. I will undergo the transplant, weeks before my 65th birthday. I feel healthier and stronger than I have in months and am keeping a positive attitude.

Of course, I was extremely fortunate that a match was found early on.

Donna

Donna
__________________
f68 MDS; abmt 1/12. ABO mismatch 11 mos. (70) transf. Ferr 3-5k. 8 phlebot. AGVHD to CGVHD. skin,eyes. lungs as of 10/13. muscle weakness &osteo long term steroids.photopheresis 2x wk as of 3-15.pred 20 eod,acyclovir, mepron, voriconazole, pantropazole, lisinopril, montelukast, anoro, azithromycin.
Reply With Quote
  #16  
Old Sat Dec 31, 2011, 04:04 PM
bebop bebop is offline
Member
  
Join Date: May 2010
Location: Maysville Ga
Posts: 323
Donna may this be the year you are cured! I will keep you in my prayers!
Reply With Quote
  #17  
Old Sat Dec 31, 2011, 06:52 PM
Lisa Z Lisa Z is offline
Member
  
Join Date: Nov 2008
Location: Ft. Washington, PA (Philadelphia area)
Posts: 111
Donna
Good luck to you. Wishing you a Healthy new Year with your new bone marrow!
__________________
Dx. 6/08 with AA, then changed shortly thereafter to MDS. Campath trial at NIH March '09 and have been transfussion independent since June '09
Reply With Quote
Reply

« Previous Thread | Next Thread »

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Confused with Bone marrow report teo MDS 168 Mon May 5, 2014 10:20 AM
Merry Christmas bebop Site Comments 3 Tue Dec 25, 2012 08:42 PM
what a fun way to spend the lead up to Christmas! SLB MDS 4 Sun Dec 2, 2012 05:47 AM
My early Christmas present LynnI MDS 2 Sat Dec 13, 2008 04:01 PM


All times are GMT -4. The time now is 02:51 AM.

Marrowforums - Archive - Privacy Policy - Top - Contact

Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org