Home         Forums  

Go Back   Marrowforums > Treatments > Transplants
Register FAQ Search Today's Posts Mark Forums Read

Transplants Bone marrow and stem cell transplantation

Reply
 
Thread Tools Search this Thread
  #1  
Old Fri May 30, 2014, 11:34 AM
ussoccer004 ussoccer004 is offline
Member
 
Join Date: Feb 2014
Location: Orlando, FL
Posts: 21
Bone Marrow Transplant Facility

Could anyone from their experience recommend a bone marrow transplant facility that has handled their care extremely well. I have both large PNH clone and Mild Aplastic Anemia.
__________________
Diagnosed PNH 2014/ Autoimmune AA 2006 treated with prednisone/ Hemoglobin 10.1; ANC .55; Platelets 150K
Reply With Quote
  #2  
Old Fri May 30, 2014, 04:32 PM
DanL DanL is offline
Member
 
Join Date: Dec 2010
Location: Denver, CO
Posts: 590
I have been very pleased with my care that I received from CBCI at Presbyterian St Lukes medical in Denver, CO. The hospital staff, nurses, and doctors have all been excellent and accessible all the way through.
__________________
MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
Reply With Quote
  #3  
Old Thu Jun 5, 2014, 01:42 AM
Heather8773 Heather8773 is offline
Member
 
Join Date: Jan 2013
Location: Houston, TX
Posts: 254
My husband had his transplant for small PNH clone w. sever aplastic anemia at Houston Methodist .. I know 3 other people who received transplants in the Houston med center all different ages one at MD Anderson w lukimia about 12 yrs and age late 60s (the other two at Houston Methodist) all are doing very very well. One had hers 10 years after having AA w lots of transfusions an I believe she's 8 yrs out
__________________
Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
Reply With Quote
  #4  
Old Sat Jun 7, 2014, 08:22 PM
Laura Laura is offline
Member
 
Join Date: Aug 2006
Location: Minnesota
Posts: 433
DO NOT get your transplant or care at Mayo Clinic Rochester! I had my transplant there and I wish I hadn't. Horrible care, doctors, nurses, etc.
__________________
Laura; dx SAA; MUD transplant June 18, 09; ITP June, 2011; fighting multiple complications/GVHD and now low counts again...
Reply With Quote
  #5  
Old Mon Jun 16, 2014, 01:39 PM
dfantle dfantle is offline
Member
 
Join Date: Jan 2012
Location: bellevue, wa
Posts: 150
Fred Hutchinson in Seattle. (where I had mine)
__________________
Dena
Age 54; DX Heavy Chain (AH) Amyloidosis 6/10; AutoSCT 3/11; Amyloidosis remission 6/11; DX SAA 7/11; Horse ATG 3/12; Mini MUD SCT 1/13; Recovered from SAA 5/13 & feeling great
Reply With Quote
  #6  
Old Wed Jun 18, 2014, 06:14 PM
Relentless Against SAA Relentless Against SAA is offline
Member
 
Join Date: Sep 2013
Posts: 77
Ussoccer,
Sent you a PM. Please let me know if you did not receive it.
Reply With Quote
  #7  
Old Sat Jun 28, 2014, 11:51 AM
bailie bailie is offline
Member
 
Join Date: Dec 2013
Location: McMinnville,OR
Posts: 825
Hello Michael, welcome. Stem cell transplants are available for ages beyond 70. What have your mother's Drs. suggested?
__________________
age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Confused with Bone marrow report teo MDS 168 Mon May 5, 2014 09:20 AM
Bone marrow transplant statistics? Cheryl C Transplants 4 Mon Jan 16, 2012 09:45 AM
Preparing for a Bone marrow transplant Nina van Nunen Tell Your Story 7 Tue Oct 20, 2009 12:58 PM


All times are GMT -4. The time now is 08:32 PM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org