Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > MDS
Register FAQ Search Today's Posts Mark Forums Read

MDS Myelodysplastic syndromes

Reply
 
Thread Tools Search this Thread
  #1  
Old Sat Mar 8, 2014, 01:47 PM
surabhi surabhi is offline
Member
 
Join Date: Feb 2012
Location: Delhi, India
Posts: 7
Question Things getting worse after 6 chemo sessions

Hello,

My mom was diagnosed with MDS three years back which progressed to RAEB II. She was given Decitabine and post her first chemo she got severe Tuberculosis and could get the next chemo until around a year back. She also got a fistula opening in her throat and was fed using a pipe for about 6 months. In the last less than a year, she has undergone 6 decitabine chemo sessions and her TB medicine is still on but close to completion.

Her CECT scan is due this Monday and her Serum cretanin counts are low and so is her blood urea. Her recent ultrasound shows both her kidneys as "increased cortical echogenicity , poor preservation of CMD, PCS is compact".

I do not know what that means but all I could get so far is that its not good. The area on her back after the bone marrow sample was taken is all black and weird, its been over a week now and it should be fine. Her aspirate report after so many chemo sessions shows RAEB-I with 9% blasts with DLC show around 4% of type 2 blasts. No auer rods seen.

I am worried for my mom and scared too. I want her to come of of this soon, she has suffered a lot already and she doesn't look good. After these many chemo sessions we were hoping to hear something nice but this doesn't sound nice to me. Can someone explain what all this means for her and what is the prognosis like?

Thank you very much for your help and understanding.
Reply With Quote
  #2  
Old Tue Mar 11, 2014, 09:17 AM
Mseth Mseth is offline
Member
 
Join Date: Sep 2013
Location: New Delhi, India
Posts: 186
Delhi

Hi Surabhi,

I'm sorry that your mother is facing problem. I am in Delhi as well. Have sent you a pm, hope you received it. I hope forum members will be able to help you with your questions, i have limited knowledge on decitabine and its effects.
If you need any support locally, I'll be happy to be of help.
Take care of your mom & yourself.
__________________
Mother age 79, dx MDS RCMD low risk del 20q April 2013, no response to EPO, Danazol. pRBC tx dependent - 2 units every 3-4 weeks, exjade Dec 2013 - Mar2014, restarted Dec 2014
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
To (continue) chemo or not chemo - that is the question! Quester Questions and Answers 12 Mon Oct 5, 2015 08:45 PM
Chemo drug used for AA (without BMT) Lucky AA 7 Fri Aug 9, 2013 01:04 AM
MDS from Chemo... No avaliable treatment?!? Jer MDS 2 Mon Jul 30, 2012 09:24 PM
The Doctor Came In Smileing Ear To Ear! anne&dean Drugs and Drug Treatments 2 Sun Jan 4, 2009 01:54 PM


All times are GMT -4. The time now is 10:05 AM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org