Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > MDS
Register FAQ Search Today's Posts Mark Forums Read

MDS Myelodysplastic syndromes

Reply
 
Thread Tools Search this Thread
  #1  
Old Mon Aug 25, 2014, 09:24 PM
pleasant1911 pleasant1911 is offline
Member
 
Join Date: Apr 2014
Location: United States
Posts: 14
How do you know if it gotten worse

My father, who is battling MDS, has lost a lot of weigh and he just look weak and frail, and skin color is all different....well he just looks different from the past couple months ago.

How can you tell if his MDS is getting worse, and what are the signs from becoming a low risk to mid risk to high risk. Does anybody have person experience with it.

He is on revlimid and vidaza, and transfusions
Reply With Quote
  #2  
Old Tue Aug 26, 2014, 06:47 AM
Birgitta-A Birgitta-A is offline
Member
 
Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
MDS

Hi pleasant 1911!
This info from Marrowforums is showing how we can tell the differences between low, interm-1, interm-2 and high risk MDS.
http://www.marrowforums.org/mds.html

As you can see we need to know the blast count in the bone marrow, cytogenetics and number of cytopenias (Hgb, WBC and platelets).

For example I have less than 5% blast cells in my bone marrow = 0.
I have chromosome aberrations -12p and -X = 0.5.
Low HGB and platelets at dx (now low WBC too) = 0.5
This means that I have
Reply With Quote
  #3  
Old Tue Aug 26, 2014, 06:50 AM
Birgitta-A Birgitta-A is offline
Member
 
Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
MDS

Sorry - I sent the post too early.

This means that I have 1.0 points = Interm- 1
Kind regards
Birgitta-A
Reply With Quote
  #4  
Old Sat Aug 30, 2014, 01:42 PM
bebop bebop is offline
Member
 
Join Date: May 2010
Location: Maysville Ga
Posts: 323
blood tests should tell alot. I watched my dad grow weaker it seemed like every day.
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Things getting worse after 6 chemo sessions surabhi MDS 1 Tue Mar 11, 2014 09:17 AM
Worse Condition Beth MDS 5 Sat Apr 21, 2012 12:08 AM
Social Security Disability with mds gbrilla Insurance, Finances, Disability, Veterans Benefits 13 Mon Jan 2, 2012 09:54 PM
Does physical activity make MDS worse? junglegirlsue MDS 3 Wed Apr 2, 2008 08:17 PM


All times are GMT -4. The time now is 09:48 AM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org