Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > PNH
Register FAQ Search Today's Posts Mark Forums Read

PNH Paroxysmal nocturnal hemoglobinuria

Reply
 
Thread Tools Search this Thread
  #1  
Old Wed Apr 16, 2014, 11:06 PM
ussoccer004 ussoccer004 is offline
Member
 
Join Date: Feb 2014
Location: Orlando, FL
Posts: 21
Symptoms before treatment

I was wondering how some of you who are taking soliris feel the day before your treatment? Do you feel run down or tired, nausea, headaches? I am on my 5th treatment going on 6th this week 04/16/2014
Reply With Quote
  #2  
Old Sun Apr 27, 2014, 11:50 PM
Shana Shana is offline
Member
 
Join Date: Apr 2014
Location: Ohio
Posts: 7
Hi there,

My doctor is putting me on Soliris this Thursday. So far the symptoms of PNH have been mostly fatigue, being unconcentrated, unmotivated and the like.
I can tell you what happens after the Soliris...

God bless!
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Lytoxan chemotherapy treatment desperately sought RyanD Drugs and Drug Treatments 4 Thu Aug 14, 2008 01:08 AM
New Treatment Center Information Marrowforums Site Announcements 0 Sun Feb 17, 2008 05:53 PM
Guide to the Treatment Center Map Marrowforums Site Announcements 0 Wed Jan 2, 2008 12:22 AM
Interactive Treatment Center Map Marrowforums Site Announcements 0 Wed Jan 2, 2008 12:22 AM


All times are GMT -4. The time now is 01:19 PM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org