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MDS Myelodysplastic syndromes

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  #1  
Old Thu Jan 1, 2009, 10:43 AM
Jill2008 Jill2008 is offline
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Join Date: Jul 2008
Location: Redding, CA
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Has anyone experienced this?

I have had mild to moderate discomfort in my sternum, ribs and spine for a few months now. My doctor doesn't seem to be too concerned. I was just curious if anyone has experienced this?
Jill
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Jill, 58 y/o female dx with MDS-U June 2008, IPSS:Int. 2. Allogeneic SCT May 25, 2010. Relapsed January 2011. Started Vidaza (azacitadine) Feb. 2011; Currently on cycle #58 , IV, 5-days every six weeks. WBC 5.3, Hgb 13.0, PLT 110 (2/16/18)
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  #2  
Old Thu Jan 1, 2009, 09:09 PM
Chirley Chirley is offline
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Yes, i've had this off and on for a long time. I told my doctor about it and he said that it was probably costochondritis and not to worry about it. He pushed on the joints with the ribs and it was tender and he said that confirmed the costochondritis diagnosis.
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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  #3  
Old Sat Jan 10, 2009, 11:26 PM
Hopeful Hopeful is offline
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Hi - I am new to this group and am also experiencing pain in my sternum and ribs. I may be fighting a virus right now and have read that this can cause inflammation of the cartilage in this area.
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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Old Sun Jan 11, 2009, 09:27 PM
Zoe's Life Zoe's Life is offline
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Join Date: May 2007
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I have that problem too. I do notice it is worse when I am sick, or if my hgb is on the rise. My ribs are almost always tender to the touch, but sometimes very tender, other times less so. Not so much in my spine though.

Zoe
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Diagnosed MDS-RA 5q- at age 47 (November 2006). Aranesp 2/07, good response.
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