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#1
Sun Jan 3, 2016, 12:52 AM
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I'm 5 years old!
MUD BMT Johns Hopkins 30 November 2010. http://www.mausmarrow.com/?attachment_id=4064
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Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com 
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#2
Sun Jan 3, 2016, 01:52 AM
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congratulations on the 5 years! That is fantastic!
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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#4
Sun Jan 3, 2016, 03:34 AM
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Congratulations, Karen.
I hope you have a boring year medically and an exciting year otherwise!
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#5
Sun Jan 3, 2016, 06:31 AM
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Congratulations! Thanks for the inspiration. Stay healthy and have a great New Year!
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Lower risk MDS diagnosed 2012. Recurring skin nodules treated with prednisone, otherwise watch and wait. HG dropped from 11.5 to 8.7. Kept going down to 5. Vidaza didn't work. BMT from MUD on September 10 2015
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#7
Sun Jan 3, 2016, 09:38 PM
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Congratulations Karen! Well done.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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#8
Sun Jan 3, 2016, 10:55 PM
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That is great Karen!! What is your status now? Any medications? Strength? Sleeping?
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age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.
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#9
Tue Jan 5, 2016, 01:26 PM
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CONGRATS KAREN!! I just celebrated my 4 yr. Whoever did the cake covered a lot of subject matter and did a really good job. So have you ever met your donor? I have not, and I never got a reply after writing them. So a happy 5 year and many more to come. I have a few lingering issues after my transplant, but I have been able to deal with them fairly easily. We all wish you good luck.
Mario
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MARIO, 52, DIAG IN 2011 W/ PNH, MUD IN DEC 2011. MINI TRANS PSL DENVER/ SOME MILD GVHD. CURRENTLY TAKING JAKAFI FOR GVHD.
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