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Old Sat Apr 6, 2019, 02:23 PM
Rarity Rarity is offline
Join Date: Sep 2017
Location: USA
Posts: 61
Biopsy after transplant question

Hello all,

Has anyone not had a bmb after transplant? Do they not do one because all numbers are normal and there is no need? Does that mean the mutations are gone too because all other tests are normal? Thanks in advance!
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Old Sat Apr 6, 2019, 04:19 PM
shadowii shadowii is offline
Join Date: Apr 2019
Posts: 38
my dad says his doctors are going to be giving him those for the rest of his life to make sure no relapse or to catch it if it starts happening
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Old Sat Apr 6, 2019, 05:09 PM
Meri T. Meri T. is offline
Join Date: Aug 2016
Location: Tokyo, Japan
Posts: 153
Yes, you could be right. If the counts are normal, and due to Insurance, the doctor might not need to do a BMB.

We have NHI here, so all my transplantee friends and I had a BMB after the transplant. Mine was a bit late, 4 months after transplant. My counts were fine at that time. My hospital did a BMB at least once for all transplantees, maybe their policy.

Not much help here, but I do think it depends on your counts, and your insurance.
Female born 1965, diagnosed MDS RAEB1 in August 2016, watch and wait for 9 months. Sibling match - Stem cell transplant in June 2017. Some GVHD skin, liver, stomach, esophagus.
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Old Sun Apr 7, 2019, 03:49 PM
DanL DanL is offline
Join Date: Dec 2010
Location: Denver, CO
Posts: 584
I had bmb done annually for the first couple of years post transplant after my numbers had normalized and the relapse was cleared. It has been 2 years since my last one because everything looks ok.

MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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Old Mon Apr 8, 2019, 09:49 AM
Rarity Rarity is offline
Join Date: Sep 2017
Location: USA
Posts: 61
Shadowii, Thank you. Wishing your father a good recovery.

Meri - Thanks for your reply. We have good insurance, so I don't think that comes into play for him at least. Just thought they'd have a look by now.

Dan - Thank you for replying. My concern is to make sure everything in the marrow is going well as the blood levels. May be they don't do one unless something is off.

Thank you all
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Old Fri Apr 12, 2019, 10:46 PM
Emily59 Emily59 is offline
Join Date: Jan 2018
Posts: 9
I had SCT in Aug 2018. They did a BMB after 3 months. After that if my numbers look good, they say I will have another BMB 1 year after transplant and annually after that.
Diagnosed with MDS-EB2 December 2017. Stem cell transplant completed August 2018.
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Old Tue Apr 16, 2019, 11:33 AM
GoodDay5150 GoodDay5150 is offline
Join Date: Sep 2014
Location: Centennial, CO
Posts: 131
Speaking from my own experience, I had 2 biopsies b4 my transplant and 2 after. The 2nd pre-transplant biopsy was to ensure that my disease had not progressed into anything else. I rem that the 2nd post-transplant biopsy was done maybe 18 mos- 2 yrs after bcse they used the smart port for the 1st time after that was placed for ease of GVHD treatments. I also asked my doctor afterwards if I would need any more BMB'S and was told not unless there was some concern in the future. I would guess the need for a biopsy is also dependent on your disease, age, etc.

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Old Fri Apr 19, 2019, 02:06 PM
David T David T is offline
Join Date: Oct 2018
Location: London, England
Posts: 16
BMB question

I had four BMBs at various stages, prior to my SCT two months ago. My doctor says he probably won't do another one unless the numbers give any cause for concern.

So as long as my counts are good, I will be spared the experience of a 5th one.
David, Age 60, diagnosed with MDS August 2018. Low Hb and platelets, weekly transfusions. No genetic mutations. Developed into AML with FLT3 mutation while waiting for a SCT. Allogenic SCT - MUD in Feb 2019. Relapsed June 2019. Azacitidine, Venetoclax and DLI.
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