Home         Forums  

Go Back   Marrowforums > Treatments > Transplants
Register FAQ Search Today's Posts Mark Forums Read

Transplants Bone marrow and stem cell transplantation

Reply
 
Thread Tools Search this Thread
  #1  
Old Mon Jun 22, 2015, 03:53 PM
traceyn11 traceyn11 is offline
Member
 
Join Date: Apr 2015
Location: Irvine, CA
Posts: 142
9/10 Donor Match Found!

I have a donor match on hold. BetheMatch told me it was a 9/10 match and that she was a 23 female in the U.S.

I have an appt with the Transplant specialist on July 9 to go over next steps and start testing.

I hope I don't have any more gut issues and that I can manage to gain some weight before then.

I am frightened because of all the gut issues I just had. I was hoping to have more time to feel stronger and be in better shape.

Looks like I will be right behind you Paul!
__________________
Tracey, mom & wife,age 58, dx MDS RAEB-2 4/15, normal cytogenetics, Update: SCT cancelled. Blasts at 67%. New dx AML.
Reply With Quote
  #2  
Old Mon Jun 22, 2015, 04:11 PM
Neil Cuadra Neil Cuadra is offline
Owner
 
Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,556
That's great news, Tracey!

How long did the donor search take from when they started looking for a match?
Reply With Quote
  #3  
Old Mon Jun 22, 2015, 04:13 PM
traceyn11 traceyn11 is offline
Member
 
Join Date: Apr 2015
Location: Irvine, CA
Posts: 142
Thanks Neil. It was pretty fast. They started the search in April and at the beginning of June, they told me they had found 2 potentials. So about 2 months!
__________________
Tracey, mom & wife,age 58, dx MDS RAEB-2 4/15, normal cytogenetics, Update: SCT cancelled. Blasts at 67%. New dx AML.
Reply With Quote
  #4  
Old Fri Jun 26, 2015, 10:28 AM
PaulS PaulS is offline
Member
 
Join Date: Sep 2014
Location: New York
Posts: 247
Hi Tracey - glad you're moving along - I think we are on the same schedule. Turns out my brother had some heart problems that showed up in pre-donation testing and he needed a stent - ironically they say I saved his life, but he now may not be able to donate to me. They have, however found some matches on the donor list and are now seeing if they will actually donate. In the meantime, after letting my hemoglobin fall to 5 I too failed my cardiac screening - ended up overnight in the ER and then on to a cardiac catheterization and another night in the hospital - now I'm on heart meds and have a new cardiologist - but nothing that should slow down the transplant. After all that I had an unusually painful bone marrow aspiration - it was all almost funny. I figure this was like a coming attractions. I meet next week with my transplant doctor to go over the biopsy and make a plan. I'll keep you posted.

What problems are you having with your gut? We both need to stay positive!
__________________
Lower risk MDS diagnosed 2012. Recurring skin nodules treated with prednisone, otherwise watch and wait. HG dropped from 11.5 to 8.7. Kept going down to 5. Vidaza didn't work. BMT from MUD on September 10 2015
Reply With Quote
  #5  
Old Fri Jun 26, 2015, 01:19 PM
italianburrito italianburrito is offline
Member
 
Join Date: Apr 2015
Location: VB
Posts: 61
Congrats on your 9/10 donor!!! thats awesome news!!
__________________
Daughter of father diagnosed with MDS RAEB-II intermediate risk due to normal cytogenetics. Blasts at 13% peripheral blood at diagnosis with no cytopenias. 6 cycles on Vidaza then on to SCT at Duke. BMT from my brother and now showing signs of relapse. DLI in the works.
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Another Donor Found! traceyn11 MDS 12 Sun Aug 23, 2015 12:32 PM
Happy I found this Forum site Kathy S Tell Your Story 2 Wed Nov 13, 2013 11:36 AM
Bone Marrow Found 9/10 What To Do??? JIMMYG MDS 2 Sat Jun 1, 2013 02:34 AM
8/10 or 9/10 mismatch Janire Transplants 13 Wed Mar 20, 2013 03:05 AM
Some information I found paulaespada AA 1 Mon Jun 2, 2008 11:37 AM


All times are GMT -4. The time now is 06:05 AM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org