Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > MDS
Register FAQ Search Today's Posts Mark Forums Read

MDS Myelodysplastic syndromes

Reply
 
Thread Tools Search this Thread
  #1  
Old Mon Jul 30, 2018, 08:33 PM
Meredith S. Meredith S. is offline
Member
 
Join Date: May 2018
Location: Maine
Posts: 6
Low ANC, high lymphocytes, MDS-unclassified

Hi there:
I have posted only one other time in the caregiver section. I am trying to figure out what the status is with my husband, Jim, 76 yrs old. He was diagnosed with MDS-Unclassifed in Jan. 2018. He was having a lot of fatigue then, but also had a couple other complications, now resolved. He is not terribly interested in learning about his disease, but I am.

His last blood tests were in April. He had:

WBC 2.3
Neutrophils 0.3 15%
Lymphs. 79%
Platelets 128

This is the highest the platelets have been all year. They were 35 last November. All his other values are within normal limits or just slightly off. He has never had anemia. The fact that he has such a low neutrophil count is worrisome, but no illness at all since sinusitis last winter. He complains of tiredness, but this week he cut down a tree and chipped it up into mulch. He works outside all day every day.

He had a BMB but we were told almost nothing except "no blasts." He is not having any treatment. No prognosis has ver been mentioned. The hematologist said that he will get Neupogen right away if he gets any infections.

Thoughts or comments?

Thank you,
Meredith S.
Reply With Quote
  #2  
Old Tue Jul 31, 2018, 04:09 AM
Meri T. Meri T. is offline
Member
 
Join Date: Aug 2016
Location: Tokyo, Japan
Posts: 174
Hi Meredith,
No blasts, quite good ! And the platelets at 128 are looking good too!

When my WBCs were that low, I got anabolic steroids. For the low neutrophils, I got antibiotics. I think the neupogens were too costly for the hematologist to render me some .

Try wearing a mask to keep off the mold and other viruses.
As for you, learning about his disease is what's best for him. Take care Meredith.
Meri.
__________________
Female born 1965, diagnosed MDS RAEB1 in August 2016, watch and wait for 9 months. Sibling match - Stem cell transplant in 2017.
Reply With Quote
  #3  
Old Sat Aug 4, 2018, 09:28 PM
Meredith S. Meredith S. is offline
Member
 
Join Date: May 2018
Location: Maine
Posts: 6
Understanding MDS-unclassifiable

This article helped me understand what is happening with husband. For others with unclassifiable MDS, you may find it valuable:

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3981947/
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Under 60 and Have Low Risk MDS? Read this. Greg H Drugs and Drug Treatments 5 Sun Sep 18, 2011 02:58 PM
The lower risk MDS patient at risk of rapid progression akita MDS 0 Mon Dec 27, 2010 04:28 AM
Low Lymphocytes, low retic & lymph nodes swollen alevoy18 Tell Your Story 3 Thu Aug 26, 2010 07:50 AM
low lymphocytes Chirley MDS 2 Thu Mar 4, 2010 12:05 AM


All times are GMT -4. The time now is 02:51 PM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org